Parkinson’s Awareness Month continued . . .

Cake courtesy of Old Dominion Home Care

Alexandra and Sonia with tulip cookiesThis Week at our Cafes
We were at two of our cafes this week – Alexandria and Fairfax. This being Parkinson’s Awareness Month, we’ve been talking about . . . Parkinson’s awareness. I’ve appreciated hearing how people first learned about Parkinson’s. We also discussed why we need Parkinson’s Awareness month, as well as how we can raise awareness. Hearing your stories, thoughts and suggestions will help us to plan our education and advocacy programs. Keep those comments coming!

Our thanks to Old Dominion Home Care for bringing us special sweet treats for Parkinson’s Awareness Month! Alexandra brought these lovely tulip cookies to Cafe Alexandria, and Lauren brought a beautiful cake to Cafe Fairfax.

During our conversation at Cafe Alexandria we talked about nutrition and books about Parkinson’s and I said I would send links for people to follow-up. Here goes.
Nutrition – from our blog in January. Click here.
Books – PSN’s For Your Bookshelf page. Click here.

Dr. Rogers answers questions for Women with Parkinson’s group
Last week I wrote about a panel discussion on World Parkinson’s Day with Karl and Angela Robb, and Dr. Drew Falconer. I hope you found it helpful. Dr. Falconer’s colleague, Dr. Sean Rogers, spoke to the Women with Parkinson’s support group earlier this month.
Dr. Rogers answered questions about:
–  unevenness of meds and the unpredictability of symptoms
–  pain and Parkinson’s
–  overactive bladder and sleep issues, sleep hygiene, and sleep studies
–  Nilotinib and the drug trial being conducted by Dr. Pagan at Georgetown
–  non-motor symptoms, including ankle swelling, eye tremors, flushing, blood pressure, and the GI tract
This women’s group is fortunate to have a lady who writes marvelous summaries of their meetings, and we have permission to share her summary of Dr. Rogers’ visit with you.
Click here to read his answers. And thank you to the Women with Parkinson’s group for sharing! Click here to check out their website.
Click here to check out the Inova Movement Disorders Program website.

Correction
There was a link that wasn’t working in last week’s Out & About. I’ve corrected it, so it should work now – It’s the “click here” link.
Last year, Dr. John Dresely, O.D. FCOVD visited a couple of our cafes to talk about Parkinson’s Disease: Effect on Vision. Click here for a summary of his talk.

What’s happening next week?

Monday, April 22 and Friday, April 26, from 11:00 am – 2:00 pm
Outreach to raise awareness at Fair Oaks Hospital
Next week, we’ll be raising awareness and sharing information about Parkinson’s with people passing through the front lobby at Fair Oaks Hospital. We’d love to see you there, either to give us a hand or just stop by and say hi! Will you join us? (Click here for details)

Wednesday, April 24 from 11:00 am – 1:00 pm (light lunch)
Cafe Ashburn **Please note our new location!**
Waltonwood at Ashburn
44141 Russell Branch Pkwy, Ashburn, VA 20147

Saturday, April 27 from 1:00 pm – 5:00 pm
Pints for Parkinson’s
Tysons Biergarten
8346 Leesburg Pike, Tysons Corner, Virginia 22182

For more details click here. . . Hope to see you Out & About next week!
Cheers,
Sonia
email: Sonia@ParkinsonSocialNetwork.org

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