Insight’s Sentimental Journey Singers featured on local TV
In September, Insight Memory Care Center partnered with Encore Creativity for Older Adults, to offer a chorus called the Sentimental Journey Singers for those diagnosed with early or beginning moderate Alzheimer’s and other memory impairments.
Local TV channel NBC 4 visited the chorus last Monday, November 18. Click here to read the article and view the video!
But wait! There’s more!
A Holiday Concert!
The Sentimental Journey Singers are currently getting ready for their first holiday concert! They will be joined with the Fairfax Encore Chorale on:
Sunday, December 1st from 2:00 pm – 3:30 pm
At St. George’s United Methodist Church
4910 Ox Rd., Fairfax VA 22030.
It is a free concert, and no tickets are required. This performance will feature seasonal holiday classics and a variety of other choral favorites.
Encore: firstname.lastname@example.org | 301-261-5747
Holiday Song and Social
Thursday, December 12, 1:30 pm – 2:30 pm
At: Capital Music Therapy Services
10560 Main Street, LL-12
Fairfax, VA 22030
Cost: $20 per/person paid on the day of the group. Cash or check. Spouse or caregiver attends for free.
Registration Deadline: Wednesday, December 11
For details RSVP: email@example.com
Resources for people who are hard of hearing
Bonnie O’Leary, Outreach Manager for the Northern Virginia Resource Center for Deaf and Hard of Hearing Persons, visited our Cafe Fairfax last week. Bonnie played an audio tape that demonstrates how people with hearing loss hear at varying levels from mild to profound. She also shared with us some of the issues that people who are hard of hearing live with and how family and friends can make their lives a bit easier.
Another thing we learned was that certain medications can cause hearing loss or tinnitus in some people, or exacerbate an existing hearing problem. Bonnie shared a list of ototoxic medications with us, and you can click here to learn more.
Bonnie also suggested that Live Transcribe, an Android application that provides real-time captioning, could be helpful.
Thank you, Bob Pearson for sharing information about this study with us!
Seeking Research Participants for “Smartwatch Technology -Symptom Monitoring” Study
Principal Investigator: Dr. Alexander Ksendzovsky, MD,PHD
Eligibility: Persons with Parkinson’s Disease
Description of Study: We are seeking patients to study a newly developed technology used to track symptoms in Parkinson’s disease. Patients are asked to wear a mobile smart watch and conduct routine clinical tests and tasks. Patients are first asked to spend up to four hours in clinic for neurological assessment while wearing the smartwatch. Patients may be asked to take the smartwatch home for seven days for further testing. The study can be arranged at times convenient for you at NewTouch Digital’s research facility or a location convenient for your participation.
Risks: No significant risk
Payment: A $100 gift certificate along with a lunch will be provided for participation.
Transportation will be provided if needed.
Please discuss participation with Dr. Alexander Ksendzovsky’s clinical team by emailing firstname.lastname@example.org or calling 412-478-1075.
WIRB IRB Study #20191934
APDA symptom tracker
Susan Dietrich, Coordinator for the American Parkinson Disease Association (APDA) in Charlottesville has been sharing information about a free app for the APDA symptom tracker. “It is a tool that you easily answer questions yes or no and it keeps track of your symptoms. Then, you can create a simple graph which can be saved in the “My Library” section of the app, and share it (you can email it) to your health care team.”
Susan recently shared that some people are wondering if this app acts as a “sensor” for collecting data about tremor, falls, etc., and she wanted us to know that it is not. There is a watch in development that may be able to act as a sensor, but it is not available at this time.
Click here for more information about the APDA symptom tracker app.
I hope this newsletter is helpful and we’ll see you Out & About soon! We’ll be at Cafe Ashburn on Wednesday. Will we see you there?
Wishing you all a happy Thanksgiving holiday!
You are invited . . . to Encore Chorale’s Holiday Concert!
Friday, December 13, at 7:30 pm
At: Heritage Fellowship Church
2501 Fox Mill Road, Reston, VA 20191
Encore Chorales of Reston and Fairfax sing traditional and contemporary seasonal music, such as:
• Beethoven’s Festival Hymn to Joy
• Amen! Tell It on the Mountain!
• Drum, Rum Tum (Hanukkah)
• Hallelujah Chorus from Handel’s Messiah
• Here We Come A-Caroling
• Let It Snow!
Encore Chorale concerts are free and open to the public.
No tickets or reservations needed. Free parking on site.
For information: Encore Chorale of Reston
Usta Could – A poem about Parkinson’s
by John Giannico
(first read aloud to the VCU College of Pharmacy Class of 2021 by
their professor, Dr. Emily Peron on October 4, 2019, Richmond VA)
Susan Dietrich, Coordinator for the American Parkinson Disease Association at UVA sent us this poem written by a gentleman living with Parkinson’s.
Susan wrote, “The poem is wonderful, and I wanted to share it far and wide. Page 1 of the attachment is the poem; page two of the attachment includes John’s thoughts about participating in this panel and writing the poem.”
Click here to read John’s poem. Thank you, Susan!
Parkinson’s Piedmont Support Group visit
This afternoon I visited the Parkinson’s Piedmont Support Group in Warrenton to give my presentation: Prepare For Your Care: How to Go Home From Hospital in Better Shape Than When You Went In. Frank Wright, ambassador for the Parkinson’s Foundation Aware in Care patient safety kit program joined me to explain why the kit is helpful and what is in it.
If you’d like us to visit your support group to talk about how to prepare for your care, including hospital, rehabilitation and doctor visits, or if you would like Frank to visit your support group, please contact me at sonia@ParkinsonSocialNetwork.org.
Cafe Fairfax this Wednesday
Slight change of plans as far as our topic is concerned this month!
Bonnie O’Leary from the Northern Virginia Resource Center for Deaf and Hard of Hearing Persons will be our visitor. Bonnie will focus on the challenges of hearing loss for caregivers, which is appropriate given that November is National Family Caregiver Month!
I hope this newsletter is helpful and we’ll see you Out & About soon! Will we see you on Wednesday?