Parkinson Social Network

Can you walk and talk?

We have word of a new study at George Mason in their Department of Rehabilitation Science. Volunteers are needed for a study of:
The Influence of Cognitive Loading on Unplanned Turning Among People with Parkinson’s Disease
The aim of the study is to determine how people with PD modify the way they move when they are challenged with a memory or verbal task.
For more information,
Click here to download the flyer or
contact: Dr. Clinton Wutzke, PhD; Principal Investigator
cwutzke@gmu.edu 703-993-1903 or
Caity Bryson, PT, DPT, MSPT, SCS; Co-Investigator
cbryson2@gmu.edu703-993-5041
** Clint will dropping by Cafe Ashburn on February 27 to talk to us about the study. He will visit Cafes Fairfax and Alexandria in March.

April is Parkinson’s Awareness Month! Plans to raise awareness here in Northern Virginia have already begun, and we’ll let you in on what’s happening soon! If you have any ideas for what you’d like to see happen, please contact me at Sonia@ParkinsonSocialNetwork.org

In the meantime, here are the details for a worldwide online Parkinson’s summit. It’s over three days, so I thought you might want to know about it now so you can save the dates.
Tickets on sale for Insight into Parkinson’s summit 2019
Insight into Parkinson’s is the world’s first, and largest, online Parkinson’s summit. This year they are holding their 2nd summit – April 11 – 13.
A discount / early bird ticket rate is currently on offer. Ticket holders will have the opportunity to talk with the speakers directly, and access the latest information on Parkinson’s technology, books and therapies via the virtual exhibition hall. For more information, and to purchase tickets, click here.

The American Parkinson Disease Association (APDA) has a webinar series you may want to check out.
Spotlight on Parkinson’s Disease
Topics include:
–  Managing Your Symptoms
–  Healthy Minds, Addressing Your Mental Health
–  The ABC’s of DBS
–  Enhancing Communication About Off
–  Staying Healthy, Keeping Fit
and more!
Click here for more information on their website.

News from Insight Memory Care Center
Wednesday, February 20, 1:00 – 3:00pm (after Cafe Fairfax)
“Dementia 101 and Clinical Trials”
Presenter: Melanie Chadwick, NP from Georgetown Memory Disorders Program\
Mondays from February 25 – March 25.
IMCC is hosting Elderlink’s “Caring for You, Caring for Me” series.
See attached flyer (click here) for more info and registration instructions.
And more in February . . .
Check out IMCC’s Education Calendar online (click here) to see their upcoming classes in the community, or sign up for Insight’s E-News to always stay in the loop.
August 3 – 8
Interested in our Caregiver Cruise to sunny and warm Bermuda?!?
Click here for more information or contact Lindsey at lindsey.vajpeyi@insightmcc.org if you have questions or are interested in joining us!

Hope to see you out and about again soon! We have a busy week next week with cafes at Alexandria and Fairfax. Check out our cafes page for more information about each. Will we see you there?

Cheers,
Sonia
email: Sonia@ParkinsonSocialNetwork.org

Let’s Dance!

Dance for PD class

Dance for PD is coming to town for it’s annual visit!
Dance for PDSaturday, March 2, 2019
11:00 am – 12:15 pm

Where? Hylton Performing Arts Center
10960 George Mason Circle, Manassas, VA 20109

There’s always a buzz when the Mark Morris Dance Group and Dance for PD comes to town! Come and join in their free movement class for person’s with Parkinson’s and their families, friends and care partners. No dance experience is required. Led by teaching artists from the Mark Morris Dance Group, you’ll explore movement and music in a non-pressured, social environment.

You can register online at http://bit.ly/dfpdhylton2019
or by phone at 1-800-957-1046, ext. 5.
Dance for PD flyer 2019 and help share the news!

I haven’t had a chance to attend yet, but I always hear about what a wonderful time people had. Every month I post their latest streamed class in Out & About and on our website so if you’d like to get an idea of what a class is like, click here.

But wait! There’s more!
The Mark Morris Dance Group will also be performing at George Mason University’s Center for the Arts Concert Hall in Fairfax for 2 performances only, March 1 and 2 at 8:00 pm. For more information and tickets, visit http://cfa.gmu.edu/ or call 703-993-2787.

Growing Resilience: Mindfulness & Body Awareness for People with Parkinson’s Disease
A 6 week class: Sundays: April 7, 14, 28 * May 5 * June 2, 9
2:00-3:30pm

This 6-week class series is specially designed to bring the benefits of mindfulness and body connection to people with Parkinson’s, and empower them towards greater inner resilience, well-being and quality of life.

This class combines strategies and techniques drawn from the clinically studied, complimentary medicine program Mindfulness-Based Stress Reduction (MBSR) with therapeutic yoga practices. All elements are designed to heighten relaxation and improve breath, movement, and body awareness, while reducing body tension and addressing symptoms of depression and anxiety often experienced by people with Parkinson’s.
Participants will receive follow-up support for each 90-minute class, including a weekly video download offering a short home practice highlighting adaptive yoga-based movements to improve stability, balance, and flexibility. Participants will also receive (2) 60-minute private sessions—one each with Trisha and Carolyn respectively, designed to help customize supportive home practices further. The cost is $345.00.

The class will be co-led by Insight Shop founder, director, and longtime MBSR instructor Trisha Stotler, and Heart Tree Yoga owner and certified yoga therapist Carolyn Black-Bagdoyan, creator of THRIVE: Supporting People with Parkinson’s Through Yoga Therapeutics.
Questions? hearttreeyoga@gmail.com or 703-862-5922.
Register: www.insightshopva.com

Volunteers needed for LSVT/LOUD training – tomorrow
Saturday, February 9, 2:00 – 4:00pm
Where? 2155 G St NW, Washington DC
GWU is training it’s graduate students in LSVT/LOUD therapy and is looking for people with Parkinson’s to volunteer as practice patients. Volunteers participating this one day will receive reduced rates on future individual speech therapy sessions at the GWU speech and hearing center.
Contact: Melanie Dorn, Melaniejoydorn@gwu.edu   |   571 215 8564

2 Michael J Fox Foundation studies
Two studies were sent to me this week to share with you.
1)  Exploring Psychosis in Parkinson’s disease and Caregiver/Care-Partner Burden. This study will collect information from a caregiver/care-partner of someone with Parkinson’s disease about how they describe psychosis. Also, they would like to understand the impact psychosis has on caregivers/care-partners. This project can be done from home at a time that is convenient for you. (Thanks, Angela!)
If you are interested in learning more and perhaps participating, please contact Gina Mamikonyan Research Coordinator 215-375-4217 Gina.Mamikonyan@gmail.com
2) Steven wrote, “Fox Insight is organizing an internet-based development of a PD database. They hope to include information (family health, patient symptoms, impact of PD on day-to-day life) from 125,000 PD patients.”
More information at https://foxinsight.michaeljfox.org (Thanks, Steven!)

Hope to see you out and about again soon!

Cheers,
Sonia
email: Sonia@ParkinsonSocialNetwork.org

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