Parkinson Organizations

Local

Parkinson Foundation of the National Capital Area (PFNCA)
Maryland Association of Parkinson’s Support (MAPS)
Parkinson’s and Movement Disorders Center at Virginia Commonwealth University
Parkinson’s Disease Research, Education and Clinical Centers (PADRECC) in Richmond, Virginia

National

American Parkinson Disease Association
“APDA is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to assist the more than 1 million Americans with PD live life to the fullest in the face of this chronic, neurological disorder. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease.”

Davis Phinney Foundation for Parkinson’s
“Our mission is to help people with Parkinson’s to live well today. To support that mission we offer specific programs, information and tools for living well.” Click here for information about their Victory Summit Symposia.

Michael J. Fox Foundation for Parkinson’s Research (MJFF)
“Our single, urgent goal: Eliminate Parkinson’s disease in our lifetime.”
While the primary focus of this foundation is research, this website also features lots of good information on Living with Parkinson’s.

Northwest Parkinson’s Foundation (NWPF)
The NWPF is based in Seattle, WA.
“The mission of the Northwest Parkinson’s Foundation is to establish optimal quality of life for the Northwest Parkinson’s Community through awareness, education, advocacy and care.”

Parkinson’s Foundation
In 2016, the National Parkinson’s Foundation and the Parkinson’s Disease Foundation merged to form the Parkinson’s Foundation.
PSN regularly shares their printed material at our events and outreach. You’ll find a list of them here.
Lots of great resource material and forums: Ask the Doctor, Ask the Nutritionist, and Talk to a Speech Clinician.
Helpline 1.800.4PD.INFO (1-800-473-4636)
Their Aware in Care kit will help you plan for a hospital visit and avoid complications. It’s all free!

Parkinson Voice Project
For more than 10 years, Parkinson Voice Project has specialized in restoring the voices of those with Parkinson’s disease. We treat patients in our clinic, conduct research, and train speech-language pathologists in our unique therapy programs.

International

We’ve connected with other Parkinson’s organizations around the world and follow them through social media as well.
World Parkinson Coalition
European Parkinson’s Disease Association (EPDA)
Parkinsons South Australia (Parkinson’s SA)
Parkinson’s Disease Support Group Ghana – only on Facebook