Meeting follow up notes:

Many thanks to those who attended today’s meeting and to those who registered but were unable to attend.

Below are the links to the video along with a couple additional links mentioned in the video:

·      Link to today’s YouTube recording from Parkinson Foundation: Seeing Clearly with Parkinson’s Disease: Vision Changes w/ Dr. Dan Gold (Assistant Professor of Neurology, Ophthalmology, Neurosurgery, Otolaryngology – Head & Neck Surgery, The Johns Hopkins Hospital) https://youtu.be/opF-iLwUa1E

·      Parkinson Foundation also included this link to their website page on Vision Changes: https://www.parkinson.org/understanding-parkinsons/non-movement-symptoms/vision

·      North American Neuro-Ophthalmology Society (NANOS) https://www.nanosweb.org/ mentioned by Dr. Gold

·      If you would like copies of the slides that are shown in the presentation, please email David Baum at David.Baum@parkinsonsocialnetwork.org.

If you have any questions, please let us know or call us at 571-286-5000.

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We will watch recorded webinar from Parkinson’s Foundation and Dan Gold, DO Assistant Professor of Neurology, Ophthalmology, Neurosurgery, Otolaryngology – Head & Neck Surgery, The Johns Hopkins Hospital who discusses how vision can be impacted by Parkinson’s Disease. After we watch the recording, we will have a facilitated discussion about the video.

Special Event!

Wednesday, March 8th @ 7pm ET
Larry Gifford, co-founder of PD Avengers

Come learn about PD Avengers from co-founder, person with Parkinson’s, and podcaster, Larry Gifford!

This non-profit organization is a global alliance of people with Parkinson’s, our partners and friends, standing together demanding change in how the disease is seen and treated. PD Avengers adds urgency to the cause of ending Parkinson’s disease focusing on supporting people with Parkinson’s and other PD organizations through wellness, advocacy and research collaborations.

In this evening event, Larry will share with us information about how the PD Avengers are working worldwide to end Parkinson’s disease and how you can get involved!

In Our Parkinson’s Community…

• George Mason University Dance for PD program will kick off their free Spring sessions on Fridays at 1pm-2:15pm starting March 3 – April 21, for more information and to register visit dance.gmu.edu/about/dance-pd
• Virginia Lifespan Respite Voucher Program This program provides reimbursement vouchers to Virginia primary caregivers for the cost of temporary, short-term respite care provided to individuals, of any age, with a documented disability or medical condition. Visit this link more information about the program.
• Fairfax County’s Golden Gazette is free and available in a digital format. For this month’s edition or find previous editions, visit the County’s website here.
• The World Parkinson Coalition has archived all the 3rd Care Partner Virtual panels from 2022. You can view the archived videos for free by visiting https://www.worldpdcoalition.org/page/3rdcarepartner.
• Learn more about the National Plan to End Parkinson’s Act. This video gives you more information about this historic legislation. You can learn more here about the bill and urge Congress to support the plan.

We are Here to Help!
Are you searching for a resource or more information about Parkinson’s?

Parkinson Social Network volunteers can help! Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org

Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.