The initial team that has come together to form the Parkinson Social Network as a nonprofit corporation is a dedicated group comprised of people with Parkinson’s disease, caregivers, and advocates.
We have been volunteering our time, and sharing our experiences and knowledge with others in the Parkinson’s community for many years. We felt it was time to form a nonprofit in order to connect people with each other in the Parkinson’s community, and provide resources and services at a more professional level than our previous volunteer-only model.
Our Board of Directors
Nancy Fiedelman, President
Nancy Fiedelman, a former medical social worker, is an independent consultant and advisor to older adults and their family members. Her experience supporting a family member living with PD for 25 years enabled her to better understand the impact of making the most of life with Parkinson’s. She is a member of the Long Term Care Coordinating Council (Fairfax) as well as being involved with community non-profit organizations focused on improving the lives of older adults.
Karl Robb, Vice President
Karl Robb has lived with Parkinson’s disease (PD) for over thirty years. Since his diagnosis, he has been a Parkinson advocate, entrepreneur, inventor, writer, photographer, Reiki Master, and speaker on PD issues. Karl is the author of A Soft Voice in a Noisy World, and co-author of the workbook Dealing and Healing with Parkinson’s Disease: A Workbook for Body, Mind & Spirit. He has blogged for ten years on his award winning website, ASoftVoice.com, is a Community Team Member to ParkinsonsDisease.net, and is a contributor to PatientsLikeMe.com. Karl is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States.
Arlene Edwards, Treasurer
Arlene Edwards retired from Capitol Hill to become a fulltime care partner for her husband who lived with Parkinson’s for almost 20 years. She worked alongside him in various exercise programs and became active with care partners when he finally consented to join a support group. After his passing, she continued working with the care partners in their support group and assisted in a water exercise program designed for people with PD.
Angela Robb, Secretary
Angela Robb is wife and carepartner for her husband, Karl, who has young onset Parkinson’s disease (PD). Angela is an advocate who speaks and writes about caregiver issues. In 2015, she was honored as a White House Champion of Change in Parkinson’s Disease. She’s co-author of the workbook Dealing and Healing with Parkinson’s Disease: A Workbook for Body, Mind & Spirit.
Ruth Ann Hadley, Director
Ruth Ann Hadley retired after many years in management in health care in public health, managed care, health services research, and also managed a grant program for the Federal government. After retiring, she served as a Long Term Care Ombudsman. She was a care partner for her late husband thru his 12 year journey with Parkinson’s, a time when they stayed very busy traveling and enjoying life to the fullest. She continues to work with the PD community who were such a strong support system for her and her husband.
David Baum, Director