Leave Nothing to Chance: The Documents Everyone Should Have & Why
Wednesday, February 18 10:00am-11:30am ET | 9am CT | 8am MT | 7am PT
Parkinson Social Network Board Director David Baum will address the documents that are vital in preserving your financial and medical best interests. He has more than twenty years’ experience as a Trustee, Executor, Court-appointed Administrator, and Attorney-in-Fact, and will address this critical subject.
Evening Living With Parkinson’s Gathering
Tuesday, February 24 7:00pm-8:00pm ET | 6pm CT | 5pm MT | 4pm PT
Our Evening Living with Parkinson’s Gathering is a group for those living with Parkinson’s disease. You are welcome to come anytime and stay for as long as you can.
New Videos/Recordings of Our Recent Programs:
The PSN Buddy Program
Our Buddy Program is an opportunity for…
Someone newly diagnosed with Parkinson’s to speak directly with someone living with Parkinson’s to ask questions of those with first-hand experience.
Persons living with Parkinson’s to speak with one-on-one another to ask questions and share experiences.
Those living with Parkinson’s to give back by sharing their experience with other individuals.
Whether you are newly diagnosed, or are currently living with Parkinson’s and would like to participate, or have any questions about the program, please
Starting February 6, 1pm – 2:25pm (in-person) – The School of Dance at George Mason University offers FREE Dance for Parkinson’s Disease (Dance for PD®) classes on our Fairfax campus. Registration is required!
March 10 5:30-6:30pm ET – APDA VA PRESS Program via Zoom (online/virtual) – APDA Parkinson Roadmap for Education and Support Services™ (PRESS) is an 8-week program that provides an opportunity for people with Parkinson’s Disease (PD) and one partner or other family member to meet with other PWP facing a similar experience and share coping strategies regarding day-to-day issues related to living with Parkinson’s.
Hidden Disabilities Sunflower program: The Hidden Disabilities Sunflower is a simple tool for you to voluntarily share that you have a disability or condition that may not be immediately apparent – and that you may need a helping hand, understanding, or more time in shops, at work, on transport, or in public spaces.
Speech Therapy Sessions are available at your fingertips – free and live! The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu. (CLICKfor Flyer)
If you are veteran with Parkinson’s, the Richmond PADRECC has many support programs for you and your carepartner. For more information, contact Jessica Kaplan at jessica.kaplan2@va.gov or 804-675-5931.
Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or call 540-665-4634.
Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
February 11th at 2pm ET/1:00 pm CT – Parkinson’s Family Education Group PVP hosted by Parkinson Voice Project – The topic is “Be the CEO of your Household.”Click here to register!
Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease. Date/Time: First Wednesday of every month / 12:00 PM EST Meeting ID: 892 0510 3333 Invite Link: https://apdaparkinson.zoom.us/j/89205103333
Real Talk: Care Partner Discussion Group 1st and 3rd Thursday of Each Month, hosted by: PMD Alliance exclusively for Care Partners supporting someone on their journey with a movement disorder. NO REGISTRATION REQUIRED. Use this link to join.
PFWPA NEW! Caregiver Evening Support Group (virtual) – Thursday, February 12th & Thursday, February 26th at 7:00 PM for the virtual evening caregiver support group meetings (on the 2nd & 4th Thursdays at 7:00 PM)
Virginia Lifespan Respite Voucher Program is available for residents of Virginia. Visit the Division for Aging Services site to learn more or apply.
Parkinson Social Network (PSN) is Here to Help!
Are you searching for a resource or more information about living with Parkinson’s disease? Parkinson Social Network volunteers can help! Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org with your question!
As you can imagine, there is a constant flow of events and resources for our Parkinson’s disease community created by local, regional, state, national and international organizations. Parkinson Social Network volunteers are committed to sharing events and resources we find with you. We encourage you to sign up for our newsletter by visiting this link. Here’s our most recent listing we made available via our monthly newsletter and event reminder emails:
PERSEVERE is a fully virtual, national trial for family caregivers of loved ones with Parkinson’s or Lewy Body Disease with cognitive change. At this time, we are hoping to reach caregivers currently caring for, or previously cared for, a loved one whose had cognitive symptoms or hallucinations for more than 2 years. To sign up, please visit https://redcap.link/PERSEVERE1
Emily Peron, a PhD student at VCU is looking for volunteers in a research study about social connections and attitudes about aging in people with Parkinson’s disease (PD).While there is no direct benefit to study participants at this time, 10 people will be randomly selected to receive a $60 Amazon gift card. For more information and to complete the survey, please follow this link: https://vcupharmacy.co1.qualtrics.com/jfe/form/SV_5AurWsy0cBEs8qa
Dr. Dorsey mentioned in his talk in August, that you can take action today and help advance research by signing up for Brain & Environment registry!
If you are veteran with Parkinson’s, the Richmond PADRECC has many support programs for you and your carepartner. For more information, download the PADRECC flyer or contact Jessica Kaplan at jessica.kaplan2@va.gov or 804-675-5931.
Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease. Date/Time: First Wednesday of every month / 12:00 PM EST Meeting ID: 892 0510 3333 Invite Link: https://apdaparkinson.zoom.us/j/89205103333
Virginia Lifespan Respite Voucher Program is available for residents of Virginia. Visit the Division for Aging Services site to learn more or apply.
Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or call 540-665-4634.
Speech Therapy Sessions are available at your fingertips – free and live! The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu. (CLICKfor Flyer)
Real Talk: Care Partner Discussion Group 1st and 3rd Thursday of Each Month, hosted by: PMD Alliance exclusively for Care Partners supporting someone on their journey with a movement disorder. NO REGISTRATION REQUIRED. Use this link to join.
Hundreds of Interviews with people living with Parkinson’s, caring for those with Parkinson’s, and those making a difference in our Parkinson’s community – all free videos (Together with Sharon) https://togetherforsharon.com/interview-index/
Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.