December Staying Connected Newsletter


Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers three online (via Zoom) support options each month:

Caregiver’s Side by Side Support Group via Zoom*

Tuesday, December 14
10:00am-11:30am EDT

This month: Looking Ahead to 2022!
This discussion for caregivers will be an open discussion that is facilitated by Parkinson Social Network volunteers who have experience caring for those with Parkinson’s disease.

Click here to register for the Caregiver’s Support Group


Online Café

How and Where to Find Information about Living Well with Parkinson’s
Wednesday, December 15th
10am-11:30am EDT

Advocates Karl and Angela Robb will share tips, resources, and discuss how to find information about living well with Parkinson’s.

Click here to register for the Online Café


People with Parkinson’s Disease Support Group via Zoom*

Tuesday, December 28th
10:00am-11:30am EDT
This month’s topic: Looking Ahead to 2022!

This will be an open discussion facilitated by Parkinson Social Network volunteers who either live with Parkinson’s or have experience caring for those with Parkinson’s.

Click here to register for the People with Parkinson’s Disease Support Group


Online Support Groups Sponsored by:



We are Here to Help!
Are you searching for a resource or more information?
Parkinson Social Network volunteers can help! 

Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org


Please consider a donation to support our programs. Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.

November Staying Connected Newsletter

Parkinson Social Network recognizes, supports, and assists all caregivers in our community.
Thank you!


Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers three online (via Zoom) support options each month:

Caregiver’s Side by Side Support Group via Zoom*

Caregiver’s Support Group via Zoom*
Tuesday, November 9th
10:00am-11:30am EDT

This month: Dr. Sarah Lageman, Ph.D., ABPP-CN
Associate Professor
Parkinson’s & Movement Disorders Center returns to lead a special presentation & facilitated discussion with caregivers.

Click here to register for the Caregiver’s Support Group


Online Café

Online learning – Is it for you?
Wednesday, November 17th
10am-11:30am EDT

Stephen Ruth is a professor of public policy at George Mason University, specializing in technology issues associated with globalization and is director of the International Center for Applied Studies in Information Technology, a grant-supported research center. He has done extensive research on distance learning and currently teaches several courses asynchronously (no face to face). 

The presentation will examine some of the important issues associated with distance learning, especially in postsecondary education, particularly some of the lessons learned in the recent shifts to virtual learning throughout the education system. Of  possible interest to the group will be some suggestions for free online college courses, many of them available from the world’s great universities. Persons with Parkinson’s may face some challenges as well as opportunities in online learning, and these will be mentioned.

Click here to register for the Online Café


Raised hands volunteering. Vector illustration

People with Parkinson’s Disease Support Group via Zoom*

Support Group for People with Parkinson’s Disease via Zoom*
Tuesday, November 23rd
10:00am-11:30am EDT

This month’s topic: What do you expect from and how do you appreciate your caregiver?

This will be an open discussion facilitated by Parkinson Social Network volunteers who either live with Parkinson’s or have experience caring for those with Parkinson’s.

Click here to register for the People with Parkinson’s Disease Support Group


Online Support Groups Sponsored by:


Research & Study Opportunity
You are also welcome to visit our Research & Study Opportunities page for more information about this study and others currently recruiting volunteers.
                            —————————————————-
If you have a diagnosis of Parkinson’s disease, you are invited to participate in a research study.
 
Sydney Richards, a Master’s student in the Genetic Counseling Training Program at the University of Maryland School of Medicine is conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing.
 
We need your help and want to hear about your experience and opinions! People who have and have not had genetic testing are encouraged to take part!
 
The study includes just a short, online survey that should only take about 15 minutes to complete. All answers are anonymous.
 
This study is voluntary, and your decision to participate will not affect your medical care.
 
If you are interested in learning more about this study, please use the link below by November 16th, 2021:
 
https://umaryland.az1.qualtrics.com/jfe/form/SV_bpEhuQEvdjAcoyG


We are Here to Help!
Are you searching for a resource or more information?
Parkinson Social Network volunteers can help! 

Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org


Please consider a donation to support our programs. Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.

October Staying Connected Newsletter

Join Parkinson Social Network for our next Online Saturday Brunch Webinar presentation:

NIH and its Role in Research and Treatment of Parkinson’s Disease
Saturday, October 30 10:30am EDT – 12pm EDT
Join the online webinar via Zoom on a computer, tablet, or phone.
 

Speakers Scheduled to Present:
Dr. Beth-Anne Sieber
Program Director in the Division of Neuro Science, National Institute of Neurological Disorders and Stroke

Dr. Debra Ehrlich
Chief of the Parkinson’s Disease Clinic at the NIH Clinical Center

Mr. Justin Cohen, Director of the Clinical Center Office of Patient Recruitment


Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers three online (via Zoom) support options each month:

Caregiver’s Side by Side Support Group via Zoom*

Tuesday, October 12th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.

This discussion for caregivers will be an open discussion that is facilitated by Parkinson Social Network volunteers who have experience caring for those with Parkinson’s disease.

Click here to register for the Caregiver’s Support Group


Online Café

Benefits of Palliative and Hospice Care
Wednesday, October 20th
10am-11:30am EDT

Gerry Rebach, RN, BSN, MS, is a retired nurse, formerly certified in HIV/AIDS and Hospice and Palliative Care nursing.
Her most recent employment was in adult day care for older adults with cognitive and/or physical challenges (e.g. Parkinson’s Disease, dementias). 

The talk will include definitions of palliative care and hospice care, explanation of eligibility for the Medicare hospice benefit, the more common symptoms managed with palliative care, medications and other modalities used for symptom management.  Discussion will include decision making and what to expect from providers.

Click here to register for the Online Café


Raised hands volunteering. Vector illustration

People with Parkinson’s Disease Support Group via Zoom*

Tuesday, October 26th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.

This will be an open discussion facilitated by Parkinson Social Network volunteers who either live with Parkinson’s or have experience caring for those with Parkinson’s.

Click here to register for the People with Parkinson’s Disease Support Group


Online Support Groups Sponsored by:


Research & Study Opportunity
You are also welcome to visit our Research & Study Opportunities page for more information about this study and others currently recruiting volunteers.
                            —————————————————-
If you have a diagnosis of Parkinson’s disease, you are invited to participate in a research study.
 
Sydney Richards, a Master’s student in the Genetic Counseling Training Program at the University of Maryland School of Medicine is conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing.
 
We need your help and want to hear about your experience and opinions! People who have and have not had genetic testing are encouraged to take part!
 
The study includes just a short, online survey that should only take about 15 minutes to complete. All answers are anonymous.
 
This study is voluntary, and your decision to participate will not affect your medical care.
 
If you are interested in learning more about this study, please use the link below by November 16th, 2021:
 
https://umaryland.az1.qualtrics.com/jfe/form/SV_bpEhuQEvdjAcoyG


We are Here to Help!
Are you searching for a resource or more information?
Parkinson Social Network volunteers can help! 

Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org


Please consider a donation to support our programs. Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.

People with Parkinson’s Disease Side by Side Support Group meets tomorrow 11/23 10am-11:30am EST

Parkinson Social Network recognizes, supports, and assists all caregivers in our community.
Thank you!

Raised hands volunteering. Vector illustration

People with Parkinson’s Disease Support Group via Zoom*

Support Group for People with Parkinson’s Disease via Zoom*
Tuesday, November 23rd
10:00am-11:30am EST

This month’s topic: How do you appreciate your caregiver?

This will be an open discussion facilitated by Parkinson Social Network volunteers who either live with Parkinson’s or have experience caring for those with Parkinson’s.

Click here to register for the People with Parkinson’s Disease Support Group


Online Support Groups Sponsored by:

Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers three online (via Zoom) support options each month:


We are Here to Help!
Are you searching for a resource or more information?
Parkinson Social Network volunteers can help! 

Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org


Please consider a donation to support our programs. Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.

%d bloggers like this: