GIVE BACK TO THE COMMUNITY – BE A PSN BUDDY^sm

Would you be willing to help a fellow Person-with-Parkinson’s Disease?  We hope you will.
 
Frequently PSN receives inquiries from those newly diagnosed with Parkinson’s Disease, as well as people who are not newly diagnosed, seeking to speak with a fellow Parkinsonian on a one-on-one basis.
 
If you wish to help your fellow Parkinsonians by engaging in a telephone conversation, please let the PSN Board know.  With your permission, we will provide your telephone number and email address on request.  We will, of course, let you know each time we share this information.
 
To participate, kindly email board@parkinsonsocialnetwork.org, or call our office at 571-286-5000.

This Month’s Events:

World Parkinson Congress (WPC)
Video Festival

Tuesday, March 12
10:00am – 11:30am ET
(9am CT, 8am MT, 7am PT)

Join us as we watch and discuss World Parkinson Congress (WPC) Video competition participant and winner videos. These videos are created by those living with Parkinson’s disease. We will view videos from the past 4 WPC Congresses.

Click Here to Register for this Event

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Preparing for and Preventing Medical Emergencies

Wednesday, March 20
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

Preparing for medical emergencies can help reduce the stress of these situations. What can you do to prepare for these situations? Join us as we discuss things you can do to prepare and possibly prevent these emergencies.

Click Here to Register for this Event

Living Well as a Carepartner –
Evening Event

Tuesday, March 26
7pm – 8pm ET
(6pm CT, 5pm MT, 4pm PT)

We welcome those who are caregivers and/or carepartners to join us for this evening meeting to discuss living well as a carepartner. We will discuss tips and strategies about how you, as a carepartner, can help yourself live well. We encourage you to participate and share in the discussion.

Click Here to Register for this Event

Happening In Our Parkinson’s Community…

• April 6, 9am-2pm – All IN for Parkinson’s – TODOS JUNTOS por el Parkinson – In Person and bilingual event – Woodbridge, VA
• FIRST EVER BLACK PD SUMMIT (various dates) For more information, contact sig.blackdiaspora@aol.com
• April 11 – World Parkinson’s Day and WPD24 Live Stream
• April 27 – VCU Health Parkinson’s Disease Symposium in Richmond VA, in-person only.
• The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
• First Wednesday of every month / 1:00 PM ET, online/virtual – Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease | Meeting ID: 892 0510 3333, Invite Link: https://apdaparkinson.zoom.us/j/89205103333
• Dance for PD restarted for the Spring in-person session at George Mason University GMU – visit their website for more details.
• NEW! Dance for PD in Staunton VA – download the flyer here. 
• The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
• Live in Maryland? MAPS has a very extensive support group listing on their website.
• Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
• Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
• Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
• SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
• Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.

Watch & Discuss: Everyday Hacks to Live Well with Parkinson’s

Tuesday, February 13
10:00am – 11:30am ET
(9am CT, 8am MT, 7am PT)

Karl shares with us his tools & tips on how he follows his passions and how that impacts his life and improves his journey with Parkinson’s disease.

Click Here to Register for this Event

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Tips for Getting the Most Out of Your Doctor’s Appointments

Wednesday, February 21
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

Join us as we discuss and share tips for getting the most out of your doctor appointments. Hear the voices of those living with Parkinson’s, carepartners/caregivers, and family members share what has worked for them. We will also share information about online resources you can use to make the most out of your doctor visits.

Click Here to Register for this Event

Let’s Talk About the Uncomfortable Side of Parkinson’s

Tuesday, February 27
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

There are some aspects of Parkinson’s disease that can be uncomfortable to live with or watch someone you love live with. The goal of this program is to provide a safe space to discuss these challenges, both in a large group and in smaller breakout groups.

Click Here to Register for this Event

Happening In Our Parkinson’s Community…

• February 5 1pm EST – Richmond/Philly PADRECC support group event – see flyer for details
• February 8 – Live Well Today Webinar: “Navigating Insurance and the Healthcare System” hosted by the Davis Phinney Foundation
• February 9 – Dance for PD restarts for the Spring in-person session at George Mason University GMU – visit their website for more details.
• February 12 – February Wellness Webcast: How to Get the Best Night’s Sleep with PD hosted by the Brian Grant Foundation
• February 13 7pm-8pm ET – ElderLink Virtual Support Call
• February 14 12-1:15pm ET – Dementia Friendly Information Session – hosted by Fairfax County Area Agency on Aging
• February 14-15 – APDA Virtual Parkinson’s Conference – Free online event
• February 23rd 9am-2pm, In Sync Richmond VA | An in person program sponsored by the Southeast PADRECC and PMD Alliance for support group leaders and community members to learn how to better support people living with a movement disorder and their partners.
• March 2, 9:00am-3:00pm –   APDA Virginia Parkinson’s Conference – Early Bird registration is now open! In Person – Williamsburg VA
• April 6, 9am-2pm – All IN for Parkinson’s – TODOS JUNTOS por el Parkinson – In Person and bilingual event – Woodbridge, VA
• The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
• NEW! Dance for PD in Staunton VA – download the flyer here. 
• The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
• Live in Maryland? MAPS has a very extensive support group listing on their website.
• Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
• Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
• Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
• SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
• Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.

Building Your Creativity, Joy, & Passion w/ Karl Robb

Tuesday, January 9th
10:00am – 11:30am ET

Karl shares with us his tools & tips on how he follows his passions and how that impacts his life and improves his journey with Parkinson’s disease.

Click Here to Register for this Event

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Watch & Discuss: Demoralization, Depression, Meaning, & Parkinson’s

Wednesday, January 17
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

We will Watch & Discuss a webinar from the Davis Phinney Foundation: People with Parkinson’s frequently deal with demoralization, depression, and finding meaning. These symptoms can lead to feelings of demoralization or loss of meaning. In this webinar, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how these symptoms begin and how to combat them. There will be facilitated discussion after viewing the webinar.

Click Here to Register for this Event!

National Plan to End Parkinson’s update

Tuesday, January 23
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

We will be discussing the National Plan to End Parkinson’s legislation that has passed the US House of Representatives and is awaiting a vote in the Senate. If you would like to read up for this event, feel free to visit: https://www.michaeljfox.org/news/national-plan-end-parkinsons-act-makes-progress-congress

Click Here to Register for this Event!

In Our Parkinson’s Community…

• January 9 @ 7pm – There’s no Normal with Brenda Heckert hosted by YOPN – For more information & Register click here.
• January 9 @ 7pm – Conversations with a Doc series hosted by MAPS | Alterations in Behavior in Parkinson’s disease with Dr. Howard Weiss.
• January 9 – February 27 – Mindfulness Course online each Tuesday, hosted by the Brian Grant Foundation. For more information, visit this link.
• February 23rd 9am-2pm, In Sync Richmond VA | An in person program sponsored by the Southeast PADRECC and PMD Alliance for support group leaders and community members to learn how to better support people living with a movement disorder and their partners.
• Dance for PD has online Movement Moments available for free to learn more about the dance program components. 
• Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
• Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
• Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
• SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
• Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.

This August, PSN is hosting only one online event to give our volunteers a much needed summer break! ​We hope you can join us on August 8th!

Living Well with Parkinson’s: Relationships
Tuesday, August 8th 10am ET
10:00am – 11:30am ET
(9am CT/8am MT/7am PT)

We will watch and discuss this pre-recorded YouTube conversation with panelists living with Parkinson’s disease hosted by the Davis Phinney Foundation. The panelists have an honest discussion about how living with Parkinson’s can have impacts on personal relationships. After watching the video (~1 hour), our volunteers will facilitate a discussion among attendees.

Click Here to Register for this Event

In Our Parkinson’s Community…

• Monday, August 7th, at 1:00pm EST – Julia Wood, OT from the Lewy Body Dementia Association will be presenting on Cognitive Fitness at the Richmond PADRECC meeting (virtiual) Microsoft Teams meeting Join on your computer, mobile app or room device Click here to join the meeting Meeting ID: 227 305 847 316 Passcode: TXmDJU Download Teams | Join on the web
• APDA Virginia Chapter kicks off their two-part Good Start Program (virtual) on August 10th – for more information, click this link.
• The next PADRECC Caregiver’s support group will be Monday, August 21st at 10:00am EST – Microsoft Teams meeting Join on your computer, mobile app or room device Click here to join the meeting Meeting ID: 287 393 077 706 Passcode: vVzrQw Download Teams | Join on the web
• August 25th – 2pm-3pm EDT – Fairfax County Agency on Aging  Creating Support Systems for Family Caregivers  webinar
• The documentary, The Long Road to Hope has released an Extended/Long Version, to view the extended version, click this link to go to YouTube.
• Richmond VA/PADRECChas online support group for Veteran’s with Early Onset Parkinson’s Disease for more info, download this flyer!
• The Department of Neurology at UVA has a page listing their Parkinson’s disease research studies.
• APDA Virginia held a webinar on Driving Safety 101: Is It Time to Turn in The Car Keys? Here’s the link to this webinar recording.
• Share you voice and join/sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease
• Learn more about The National Plan to End Parkinson’s Act,  learn more here about the bill and urge Congress to support the plan.

This month, PSN hosted only one online event to give our volunteers a much needed summer break!

July’s focus is on Nutrition:

Watch & Discuss: Nutrition & Parkinson’s with Jessica Schroeder – This video is about 50 minutes long. It is available on YouTube. You can access it by this link: https://www.youtube.com/watch?v=Y8EkVukncMc

Jessica also has a Eating Well on a Budget video you can access here https://www.youtube.com/watch?v=Q1rSJIGohAM&t=190s

Davis Phinney Foundation has a whole playlist of nutrition videos with Jessica, which you can access here: https://www.youtube.com/playlist?list=PLjhrt2hLuddLC-LGmAcz7n2ZlzXEsqyq3

The Davis Phinney Foundation has an excellent collection of recorded webinars, lectures, and discussions that are archived on YouTube. You can access the entire library here: https://www.youtube.com/@davisphinneyfdn/featured

Our belief here at PSN is that there are excellent resources available within the Parkinson’s community that we can share.

The Davis Phinney Foundation also has a nutrition information library on their website, which you can access here: https://davisphinneyfoundation.org/resources/
When you access this page, click the nutrition button where there is over 30 resources listed.

The Parkinson Foundation also has many resources here: https://www.parkinson.org/library/fact-sheets/nutrition
American Parkinson Disease Foundation also has a nutritional fact sheet here: https://www.apdaparkinson.org/wp-content/uploads/2022/05/APDA22325-Nutrition-Factsheet-D2V2.pdf
The Brian Grant Foundation also has good nutrition resources and webinars here: https://briangrant.org/nutrition/

Dietician Richelle Flanagan has Young Onset Parkinson’s and has also written about dietary issues and Parkinson’s. She also helped develop the app: My Moves Matter https://www.mymovesmatter.com/ as a tracking app for women and men with Parkinson’s. Richelle also presented at the World Parkinson’s Congress about diet and Parkinson’s. She wrote an article for the WPC blog about her involvement: https://www.worldpdcongress.org/home/2023/7/1/nutrition-and-parkinsons-why-does-it-matter

Dr. Laurie Mischley is a researcher in Parkinson’s and nutrition. You can visit her website for information about Dr. Mischley, her research via PRO-PD study, and additional information about nutrition and Parkinson’s: https://educationismedicine.com/

In Our Parkinson’s Community…

• A friend of PSN just shared this NY Times article: Can You Cure Constipation Without Laxatives? (subscription may be required).
• Parkinson’s Foundation just published 6 Essential Tips for the LGBTQ+ Parkinson’s Community
• APDA Virginia recently held a webinar on Driving Safety 101: Is It Time to Turn in The Car Keys? Here’s the link to this webinar recording.
• Do you love dance? Dance for PD has many dance at home opportunities. Follow this link to find out more.
• Richmond VA/PADRECChas online support group for Veteran’s with Early Onset Parkinson’s Disease for more info, download this flyer!
• The Department of Neurology at UVA has a page listing their Parkinson’s disease research studies.
• The PMD Alliance has a the More You Know video series where a Movement Disorder Specialist explains each of the FDA approved medications for Parkinson’s Disease.
• Learn more about The National Plan to End Parkinson’s Act. This video gives you more information about this historic legislation. You can learn more here about the bill and urge Congress to support the plan.

Gastrointestinal Symptoms of Parkinson’s Disease with
Dr. Leslie J. Cloud, MSc
Associate Professor of Neurology
Director, Parkinson’s Disease Center of Excellence
VCU School of Medicine

Tuesday, June 13th
10:00am – 11:30am ET

We are going to talk about all ways PD and PD treatments can impact your digestive tract and what you can do to get relief if you are suffering from any of these gastrointestinal problems. I promise that I can make talking about poop fun (ok, maybe not fun, but at least informative)!

Click Here to Register for this Event

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Watch & Discuss: Medical Myths & Parkinson’s (includes regulated and unregulated supplements) with Dr. Benzi Kluger

Wednesday, June 21st
10:00am – 11:30am ET

Join us for a viewing of the previously recorded webinar of the Davis Phinney Foundation.

The YouTube description states:
 Neurologist Benzi Kluger, University of Rochester, has dedicated a large portion of his professional career helping the Parkinson’s community bust medical myths. In the following interview he discusses how to detect medical myths, unregulated versus regulated supplements, and myths surrounding THC, cannabis, stem cells, deep brain stimulation, diet, and exercise.
A facilitated discussion will follow the showing of the video.

Click Here to Register for this Event!

In Our Parkinson’s Community…

• June 13th 7pm ET – Psychological Flexibility: What is it and why is it important for YOPD? with Dr. Bradley McDaniels hosted by YOPN – follow this link to register.
• June 15 is the deadline to register for the 6th World Parkinson Congress being held in Barcelona, Spain July 4-7. Click here to register for this worldwide event.
• June 20th 7pm ET – What Frustrates You about Health Care? Here’s My Take – What’s Yours? with Dr. Lisa Shulman(University of Maryland)from MAPS – click here to register.
• A friend of PSN just shared this NY Times article: Can You Cure Constipation Without Laxatives? (subscription may be required).
• Parkinson’s Foundation just published 6 Essential Tips for the LGBTQ+ Parkinson’s Community
• APDA Virginia recently held a webinar on Driving Safety 101: Is It Time to Turn in The Car Keys? Here’s the link to this webinar recording.
• Do you love dance? Dance for PD has many dance at home opportunities. Follow this link to find out more.
• Richmond VA/PADRECChas online support group for Veteran’s with Early Onset Parkinson’s Disease for more info, download this flyer!
• The Department of Neurology at UVA has a page listing their Parkinson’s disease research studies.
• The PMD Alliance has a the More You Know video series where a Movement Disorder Specialist explains each of the FDA approved medications for Parkinson’s Disease.
• Learn more about The National Plan to End Parkinson’s Act. This video gives you more information about this historic legislation. You can learn more here about the bill and urge Congress to support the plan.