Benefits of Palliative and Hospice Care w/ Gerry Rebach, RN, BSN, MS, at our Online Café tomorrow/Wednesday 10/20

Benefits of Palliative and Hospice Care
w/ Gerry Rebach, RN, BSN, MS, 
at our Online Café tomorrow
Wednesday October 20th
10am – 11:30am EDT

Gerry Rebach, RN, BSN, MS, is a retired nurse, formerly certified in HIV/AIDS and Hospice and Palliative Care nursing. Her most recent employment was in adult day care for older adults with cognitive and/or physical challenges (e.g. Parkinson’s Disease, dementias). 

The talk will include definitions of palliative care and hospice care, explanation of eligibility for the Medicare hospice benefit, the more common symptoms managed with palliative care, medications and other modalities used for symptom management.  Discussion will include decision making and what to expect from providers.

The café will open at 10:00am EDT for socializing until 10:10am EDT. The meeting start promptly at 10:10 will meet for 80 minutes. You are welcome to arrive late or leave early.

Registration is required. After registering, you will receive a confirmation email containing information about joining the meeting. To register for the café, click the button below.

If you registered previously for this event, please use your registration confirmation link to enter the event instead of registering again, please!

October Staying Connected Newsletter

Join Parkinson Social Network for our next Online Saturday Brunch Webinar presentation:

NIH and its Role in Research and Treatment of Parkinson’s Disease
Saturday, October 30 10:30am EDT – 12pm EDT
Join the online webinar via Zoom on a computer, tablet, or phone.
 

Speakers Scheduled to Present:
Dr. Beth-Anne Sieber
Program Director in the Division of Neuro Science, National Institute of Neurological Disorders and Stroke

Dr. Debra Ehrlich
Chief of the Parkinson’s Disease Clinic at the NIH Clinical Center

Mr. Justin Cohen, Director of the Clinical Center Office of Patient Recruitment


Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers three online (via Zoom) support options each month:

Caregiver’s Side by Side Support Group via Zoom*

Tuesday, October 12th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.

This discussion for caregivers will be an open discussion that is facilitated by Parkinson Social Network volunteers who have experience caring for those with Parkinson’s disease.

Click here to register for the Caregiver’s Support Group


Online Café

Benefits of Palliative and Hospice Care
Wednesday, October 20th
10am-11:30am EDT

Gerry Rebach, RN, BSN, MS, is a retired nurse, formerly certified in HIV/AIDS and Hospice and Palliative Care nursing.
Her most recent employment was in adult day care for older adults with cognitive and/or physical challenges (e.g. Parkinson’s Disease, dementias). 

The talk will include definitions of palliative care and hospice care, explanation of eligibility for the Medicare hospice benefit, the more common symptoms managed with palliative care, medications and other modalities used for symptom management.  Discussion will include decision making and what to expect from providers.

Click here to register for the Online Café


Raised hands volunteering. Vector illustration

People with Parkinson’s Disease Support Group via Zoom*

Tuesday, October 26th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.

This will be an open discussion facilitated by Parkinson Social Network volunteers who either live with Parkinson’s or have experience caring for those with Parkinson’s.

Click here to register for the People with Parkinson’s Disease Support Group


Online Support Groups Sponsored by:


Research & Study Opportunity
You are also welcome to visit our Research & Study Opportunities page for more information about this study and others currently recruiting volunteers.
                            —————————————————-
If you have a diagnosis of Parkinson’s disease, you are invited to participate in a research study.
 
Sydney Richards, a Master’s student in the Genetic Counseling Training Program at the University of Maryland School of Medicine is conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing.
 
We need your help and want to hear about your experience and opinions! People who have and have not had genetic testing are encouraged to take part!
 
The study includes just a short, online survey that should only take about 15 minutes to complete. All answers are anonymous.
 
This study is voluntary, and your decision to participate will not affect your medical care.
 
If you are interested in learning more about this study, please use the link below by November 16th, 2021:
 
https://umaryland.az1.qualtrics.com/jfe/form/SV_bpEhuQEvdjAcoyG


We are Here to Help!
Are you searching for a resource or more information?
Parkinson Social Network volunteers can help! 

Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org


Please consider a donation to support our programs. Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.

September’s Watch & Discuss Café Sleep Disorders & Parkinson’s video information

Hello everyone – Many of you have asked for the link for the sleep video presented during the September’s Watch and Discuss Café event. Here are the links:

Dr. El-Feky’s video titled Evaluation and Treatment of Common Sleep Disorders Associated with Parkinson’s was presented by the Parkinson Voice Project: https://www.parkinsonvoiceproject.org/ShowContent.aspx?i=1849

This is the link to the YouTube video of the same presentation: https://youtu.be/cK9NX4j10k8

Please let us know if you have any questions.

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