Research & Study Opportunities

Raised hands volunteering. Vector illustration

If you represent a research organization and would like to have your study promoted here, please email info@parkinsonsocialnetwork.org

One of the opportunities in our Parkinson’s community is participating in research studies. Here are some research study opportunities you may find of interest:


Volunteers Needed – To better understand the experience of individuals with Parkinson’s disease with genetic testing.

My name is Sydney Richards, and I am a student in the Master’s in Genetic Counseling Training Program at the University of Maryland School of Medicine. I am conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing. My passion in this research is personal, as one of my family members has Parkinson’s disease.

People who have and have not had genetic testing are encouraged to take part! Individuals over age 18 who have a diagnosis of Parkinson’s disease, are English-speaking, and live in the US can take part in the study. We kindly ask those who have a caregiver or family member presently acting as their healthcare representative at medical appointments do not take the survey.

Participation consists of an anonymous, online survey that should take about 15 minutes to complete. We will ask questions about your demographic information, your diagnosis of Parkinson’s disease, and your experience with and opinions about genetic testing.

Participation in the study is voluntary. Your decision to participate will not affect your medical care.

Thank you for your consideration. We hope the knowledge gained will help to provide better patient care and to further provider understanding of the experiences of those with Parkinson’s disease with genetic testing.

If you are interested in learning more about this study, please use the link below by November 16th, 2021:

https://umaryland.az1.qualtrics.com/jfe/form/SV_bpEhuQEvdjAcoyG

Sincerely,

Sydney Richards                                   

Master’s in Genetic Counseling Candidate               

University of Maryland School of Medicine             sydney.richards@som.umaryland.edu

Shannan Dixon, MS, CGC

Director, Master’s in Genetic Counseling Training Program

University of Maryland School of Medicine sdelany@som.umaryland.edu


Volunteers needed for Research Study – Voice and Communication with Parkinson’s

The Davies School of Communication Sciences and Disorders at the Fort Worth Campus of Texas Christian University is conducting research to investigate the
emotional reactions, attitudes and coping behaviors regarding voice problems in Parkinson’s disease.

Click the image to the left to download the flyer and read the details of the study. Please contact Zoë Thijs at
zoe.thijs@tcu.edu if you have questions or would like to participate.

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