Parkinson Social NetworkIn Two Weeks…Larry Gifford, co-founder of PD Avengers in a special evening event at 7pm ET
Larry was diagnosed with Young Onset Parkinson’s Disease at the age of 45 in August 2017. In 2020, Larry read the book “Ending Parkinson’s Disease.” It sparked a series of Zoom calls during the early days of COVID to discuss the concepts of the book. As it ultimately is a prescription for action, The PD Avengers were born in the Fall of 2020.
This non-profit organization is a global alliance of people with Parkinson’s, our partners and friends, standing together demanding change in how the disease is seen and treated. PD Avengers adds urgency to the cause of ending Parkinson’s disease focusing on supporting people with Parkinson’s and other PD organizations through wellness, advocacy and research collaborations.
In this evening event, Larry will share with us information about how the PD Avengers are working worldwide to end Parkinson’s disease and
how YOU can get involved!
Learn more about clinical trials participation with advocate Robert “Bob” Pearson Tuesday 2/14 @ 10am ET!
Participating in Clinical Trials w/ advocate Robert Pearson
Online Support Group via Zoom
Tuesday, February 14
10:00am-11:30am ET
Bob is a native Washingtonian who comes from a military family. He served in Vietnam and now is a volunteer service officer with the Disabled American Veterans.
Bob was diagnosed with Parkinsonism in 2014. He is a Michael J Fox ambassador for research and public policy, collaborating with Principle Investigators on grant review applications, study design and ethics. Bob has participated as a trial and study volunteer for almost two dozen PD studies, including two, first in human, Phase 1 Investigational Drug trials. He has been a panel member / speaker on Parkinson’s TV, APDA, PFNCA conferences and has attended two World Parkinson’s Congresses. Bob will share his experiences and take questions.
February’s Events:
February 14
Online Support Group
Participating in Clinical Trials w/ advocate Robert Pearson
February 15
Special Evening Online Parkinson’s Café
Watch & Discuss: Winter Stars: A Conversation with author, Dave Iverson from the Davis Phinney Foundation
February 28
Online Support Group
Watch & Discuss: Seeing Clearly with Parkinson’s Disease: Vision Changes
Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers online (via Zoom) support options each month:
Online Evening Parkinson’s Café
Special Evening Café
Wednesday, February 15
7:00pm-8:30pm ET
Watch & Discuss: Winter Stars: A Conversation with author, Dave Iverson from the Davis Phinney Foundation
We will watch a recorded interview of Dave Iverson, writer, film producer, film director, and retired broadcast journalist who tells his story of choosing to move in with his 95 year old mother to be her full-time caregiver all while having recently been diagnosed with Parkinson’s himself from the Davis Phinney Foundation. A volunteer led discussion will immediately follow the viewing of the video.
Click here to register for this special Evening Online Parkinson’s Café
Online Support Group via Zoom
Tuesday, February 28th
10:00am-11:30am ET
Watch & Discuss: Seeing Clearly with Parkinson’s Disease: Vision Changes
We will watch recorded webinar from Parkinson’s Foundation and Dan Gold, DO Assistant Professor of Neurology, Ophthalmology, Neurosurgery, Otolaryngology – Head & Neck Surgery, The Johns Hopkins Hospital who discusses how vision can be impacted by Parkinson’s Disease. After we watch the recording, we will have a facilitated discussion about the video.
In Our Parkinson’s Community…
- APDA Virtual Parkinson’s Conference: Educate, Empower, Engage – Wednesday, Feb. 15 & Thursday, Feb. 16, 2023 – Register today!
- Virginia Lifespan Respite Voucher Program This program provides reimbursement vouchers to Virginia primary caregivers for the cost of temporary, short-term respite care provided to individuals, of any age, with a documented disability or medical condition. Visit this link more information about the program.
- Fairfax County’s Golden Gazette is free and available in a digital format. For this month’s edition or find previous editions, visit the County’s website here.
- The World Parkinson Coalition has archived all the 3rd Care Partner Virtual panels from 2022. You can view the archived videos for free by visiting https://www.worldpdcoalition.org/page/3rdcarepartner.
- Learn more about the National Plan to End Parkinson’s Act. This video gives you more information about this historic legislation. You can learn more here about the bill and urge Congress to support the plan.
We are Here to Help!
Are you searching for a resource or more information about Parkinson’s?
Parkinson Social Network volunteers can help! Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org
Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.
Parkinson Social Network 