October Staying Connected Newsletter

Join Parkinson Social Network for our next Online Saturday Brunch Webinar presentation:

NIH and its Role in Research and Treatment of Parkinson’s Disease
Saturday, October 30 10:30am EDT – 12pm EDT
Join the online webinar via Zoom on a computer, tablet, or phone.

Speakers Scheduled to Present:
Dr. Beth-Anne Sieber
Program Director in the Division of Neuro Science, National Institute of Neurological Disorders and Stroke

Dr. Debra Ehrlich
Chief of the Parkinson’s Disease Clinic at the NIH Clinical Center

Mr. Justin Cohen, Director of the Clinical Center Office of Patient Recruitment

Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers three online (via Zoom) support options each month:

Caregiver’s Side by Side Support Group via Zoom*

Tuesday, October 12th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.

This discussion for caregivers will be an open discussion that is facilitated by Parkinson Social Network volunteers who have experience caring for those with Parkinson’s disease.

Click here to register for the Caregiver’s Support Group

Online Café

Benefits of Palliative and Hospice Care
Wednesday, October 20th
10am-11:30am EDT

Gerry Rebach, RN, BSN, MS, is a retired nurse, formerly certified in HIV/AIDS and Hospice and Palliative Care nursing.
Her most recent employment was in adult day care for older adults with cognitive and/or physical challenges (e.g. Parkinson’s Disease, dementias). 

The talk will include definitions of palliative care and hospice care, explanation of eligibility for the Medicare hospice benefit, the more common symptoms managed with palliative care, medications and other modalities used for symptom management.  Discussion will include decision making and what to expect from providers.

Click here to register for the Online Café

Raised hands volunteering. Vector illustration

People with Parkinson’s Disease Support Group via Zoom*

Tuesday, October 26th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.

This will be an open discussion facilitated by Parkinson Social Network volunteers who either live with Parkinson’s or have experience caring for those with Parkinson’s.

Click here to register for the People with Parkinson’s Disease Support Group

Online Support Groups Sponsored by:

Research & Study Opportunity
You are also welcome to visit our Research & Study Opportunities page for more information about this study and others currently recruiting volunteers.
If you have a diagnosis of Parkinson’s disease, you are invited to participate in a research study.
Sydney Richards, a Master’s student in the Genetic Counseling Training Program at the University of Maryland School of Medicine is conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing.
We need your help and want to hear about your experience and opinions! People who have and have not had genetic testing are encouraged to take part!
The study includes just a short, online survey that should only take about 15 minutes to complete. All answers are anonymous.
This study is voluntary, and your decision to participate will not affect your medical care.
If you are interested in learning more about this study, please use the link below by November 16th, 2021:

We are Here to Help!
Are you searching for a resource or more information?
Parkinson Social Network volunteers can help! 

Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org

Please consider a donation to support our programs. Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.

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