Watch & Discuss: Parkinson’s Dementia vs Typical Age-Related Decline recorded by PMD Alliance

Tuesday, September 9th
10am-11:30am ET (9am CT, 8am MT, 7am PT)

We will watch this PMD Alliance video together online and then have a facilitated discussion after the viewing. In this recorded webinar, Dr. Ospina (Dr. Maria Cristina Ospina, MD is a movement disorder specialist & Assistant Professor of Clinical Neurology at the University of Arizona) answers questions from the webinar audience including topics: executive dysfunction, hallucinations, motor vs non-motor function, how the frontal lobe is effected in advanced Parkinson’s, testing for dementia, neuropsych testing, sleep disturbances, and more. This session will not be recorded.

September Open Topic Discussion Forum

Wednesday, September 17th
10am-11:30am ET (9am CT, 8am MT, 7am PT)

As summer comes to a close, we will open the floor for those attending to bring topics to discuss topics, share resources, and more! We welcome both people with Parkinson’s, carepartners/caregivers, and family members to attend.
One topic that has already been suggested, by the community, is to discuss The Parkinson’s Plan book that Dr. Ray Dorsey introduced in his August presentation.

Evening Carepartners Gathering/Discussion

Tuesday, September 30
7pm-8pm ET
(6pm CT | 5pm MT | 4pm PT)

Join us for an evening gathering for carepartners/caregivers to discuss topics suggested by those who attend. This session is facilitated by PSN volunteers with carepartner experience. This session will not be recorded.

ICYMI: In Case You Missed It!

Did you miss neurologist and movement disorder specialist, Dr. Evan Gray’s presentation: Take Control of Parkinson’s with the Parkinson’s Disease Specialist?
Click the play button above to watch the video or view on our YouTube channel!

Give Back To The Community – Be A PSN Buddy

Would you be willing to help a fellow Person-with-Parkinson’s Disease? We hope you will.

Frequently, PSN receives inquiries from those newly diagnosed with Parkinson’s Disease, as well as people who are not newly diagnosed, seeking to speak with a fellow Parkinsonian on a one-on-one basis.

If you wish to help your fellow Parkinsonians by engaging in a telephone conversation, please let us know! With your permission, we will provide your telephone number and email address on request. We will, of course, let you know each time we share this information.

To participate, kindly email board@parkinsonsocialnetwork.org, or call our office at 571-286-5000.

Happening In Our Parkinson’s Community…

THIS SATURDAY – September 6 – APDA Virginia Parkinson’s Conference in Roanoke VA Click here for more information and to register!
September 12^th PD Education Day on at Stafford Crossings Community Church(1420 Forbes Street, Fredericksburg, VA, 22405). Click here to register or call American Parkinson Disease Association, Virginia Chapter at 757-408-8921
September 19-21 YOPN Carefree Retreat, Carefree AZ – Click here for more information about this first national Young Onset Parkinson’s Network meeting/retreat!
Real Talk: Care Partner Discussion Group 1st and 3rd Thursday of Each Month, hosted by: PMD Alliance
Exclusively for Care Partners supporting someone on their journey with a movement disorder. NO REGISTRATION REQUIRED. Use this link to join.
PERSEVERE is a fully virtual, national trial for family caregivers of loved ones with Parkinson’s or Lewy Body Disease with cognitive change. They are especially looking for:
–Caregivers currently caring for a loved one whose had cognitive symptoms or hallucinations for less than 3 years.
–All current or former caregivers from underrepresented populations (male, rural-dwelling or non-Caucasian). To sign up, please visit https://redcap.link/PERSEVERE1
Emily Peron, a PhD student at VCU is looking for volunteers in a research study about social connections and attitudes about aging in people with Parkinson’s disease (PD).While there is no direct benefit to study participants at this time, 10 people will be randomly selected to receive a $60 Amazon gift card. For more information and to complete the survey, please follow this link: https://vcupharmacy.co1.qualtrics.com/jfe/form/SV_5AurWsy0cBEs8qa
UVA Moves – PD Clinic Newsletter Spring edition is available at this link – The newsletter includes clinic articles and clinical trials information.
If you are veteran with Parkinson’s, the Richmond PADRECC has many support programs for you and your carepartner. For more information, download the PADRECC flyer or contact Jessica Kaplan at jessica.kaplan2@va.gov or 804-675-5931.
APDA Virginia hosts exercise groups and events around the state of Virginia – Learn more about their programs by visiting: https://www.apdaparkinson.org/community/virginia/
Virginia Lifespan Respite Voucher Program is available for residents of Virginia. Visit the Division for Aging Services site to learn more or apply.
Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or call 540-665-4634.
Parkinson’s Speech therapy via teletherapy in VA and DC – The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu.
Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
Live in Maryland? MAPS has an extensive support group listing on their website.
Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.