Watch & Discuss: Getting Through: Communicating with Your Parkinson’s Care Team – Living With Parkinson’s Meetup (Davis Phinney)

Tuesday, October 15
10:00am – 11:30am ET

We will watch the this Davis Phinney Foundation YouTube video Getting Through: Communicating with Your Parkinson’s Care Team – Living With Parkinson’s Meetup together online and then have a facilitated discussion after the viewing. In this recorded meetup, the focus is on navigating relationships with care providers. The panelists talk about what’s worked—and what hasn’t—when it comes to communication, advocating for themselves, and getting the care they need. After watching this video, we will have a live facilitated discussion about what we have watched.

Evening Living with Parkinson’s Gathering/Discussion

Tuesday, October 28
7:00pm-8:00pm ET

Join us for an evening gathering for people living with Parkinson’s to discuss topics suggested by those who attend. This session is facilitated by PSN volunteers. This session will not be recorded.

ICYMI: In Case You Missed It!

Did you miss Why is it so hard to get a good night’s sleep with Parkinson’s disease? Dr. Lawrence M. Stein, MD? Click the play button above to watch the video or view on our YouTube channel!

Give Back To The Community – Be A PSN Buddy

Would you be willing to help a fellow Person-with-Parkinson’s Disease? We hope you will.

Frequently, PSN receives inquiries from those newly diagnosed with Parkinson’s Disease, as well as people who are not newly diagnosed, seeking to speak with a fellow Parkinsonian on a one-on-one basis.

If you wish to help your fellow Parkinsonians by engaging in a telephone conversation, please let us know! With your permission, we will provide your telephone number and email address on request. We will, of course, let you know each time we share this information.

To participate, kindly email board@parkinsonsocialnetwork.org, or call our office at 571-286-5000.

Happening In Our Parkinson’s Community…

Dance for PD @ George Mason University – Sept 19-November 21 – The Dance for PD® program at George Mason University’s School of Dance has announced they are back in the studio! Returning to lead classes is Elizabeth Spatz, Mason School of Dance adjunct faculty member, with assistance from GMU BFA dance majors. Classes are on Fridays, free, and run through November 21. For more info, dates, & to register visit https://dance.gmu.edu/about/dance-pdr
November: APDA Virginia Care Partner Education Series – A weekly virtual program designed to support the unsung heroes of Parkinson’s — the care partners. Each Tuesday at 1:00 PM ET, experts will share practical tools and resources, followed by Q&A. Click here for dates, info, and to register!
November: Parkinson’s Good Start Program-Offered Virtually and in-person – A two-part educational series for those diagnosed with Parkinson’s within the last three years and their care partners. Presented by: APDA Virginia, PARC, and Parkinson’s specialists from UVA’s Department of Neurology. Click here for more info and to register!
November 18 2pm-3pm ET: Virtual Speech Informational Session presented by Julia Lidgard, M.S., CCC-SLP Assistant Clinic Director/ Professor (Clinical) at the University of Utah hosted by Power Over Parkinson’s. Click here to register for this event!
PERSEVERE is a fully virtual, national trial for family caregivers of loved ones with Parkinson’s or Lewy Body Disease with cognitive change. They are especially looking for:
–Caregivers currently caring for a loved one whose had cognitive symptoms or hallucinations for less than 3 years.
–All current or former caregivers from underrepresented populations (male, rural-dwelling or non-Caucasian). To sign up, please visit https://redcap.link/PERSEVERE1
Emily Peron, a PhD student at VCU is looking for volunteers in a research study about social connections and attitudes about aging in people with Parkinson’s disease (PD).While there is no direct benefit to study participants at this time, 10 people will be randomly selected to receive a $60 Amazon gift card. For more information and to complete the survey, please follow this link: https://vcupharmacy.co1.qualtrics.com/jfe/form/SV_5AurWsy0cBEs8qa
UVA Moves – PD Clinic Newsletter Fall edition is available at this link – The newsletter includes clinic articles and clinical trials information.
Dr. Dorsey mentioned in his talk in August, that you can take action today and help advance research by signing up for Brain & Environment registry!
If you are veteran with Parkinson’s, the Richmond PADRECC has many support programs for you and your carepartner. For more information, download the PADRECC flyer or contact Jessica Kaplan at jessica.kaplan2@va.gov or 804-675-5931.
APDA Virginia hosts exercise groups and events (online and in-person) around the state of Virginia. Learn more about these programs: https://www.apdaparkinson.org/community/virginia/
Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease.
Date/Time: First Wednesday of every month / 12:00 PM EST
Meeting ID: 892 0510 3333
Invite Link: https://apdaparkinson.zoom.us/j/89205103333
Virginia Lifespan Respite Voucher Program is available for residents of Virginia. Visit the Division for Aging Services site to learn more or apply.
Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or call 540-665-4634.
Speech Therapy Sessions are available at your fingertips – free and live! The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu. (CLICK for Flyer)
Real Talk: Care Partner Discussion Group 1st and 3rd Thursday of Each Month, hosted by: PMD Alliance exclusively for Care Partners supporting someone on their journey with a movement disorder. NO REGISTRATION REQUIRED. Use this link to join.
Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
Live in Maryland? MAPS has an extensive support group listing on their website.
Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.