Parkinson Social Network

Sharing and Learning

origami kaleidoscope

origami kaleidoscopeJune cafes

Cafe McLean – June 13

After enjoying a very yummy lunch provided by our hosts at Lewinsville Retirement Residence (thank you!), our conversation about hobbies and things we do in our free time turned into an origami lesson. Some of you may remember when Marcia brought some origami creations to Cafe Fairfax in April last year – in origami kaleidoscopeparticular her legendary butterfly ball. She brought some new ones yesterday, which we admired with lots of oohs and aahs. Despite our protests that we couldn’t create something in a million years, Marcia patiently taught us how to make some origami critters that hopped! It was lots of fun – thank you, Marcia!
origami critters
The photos above and right are of a kaleidescope that Marcia brought. On the left are my attempts – frog (green), bunny (yellow) and grasshopper (red). And yes, they do hop!

Next week is a two-cafe week!
We’ll meet at Cafe Alexandria on Monday and Mary Lee Anderson, Executive Director of Senior Services of Alexandria will be our visitor. On Wednesday we’ll meet at Cafe Fairfax and share our hobbies or things we do in our spare time – past and/or present. If you have something you’d like to share please bring it along. It’s also the 2nd anniversary of our cafes so we’re pretty excited about that! For more information about our cafes this month, please scroll down.

And in other news . . .

I had quite a variety of things pop up in my inbox this week, so the following may seem kind of an odd collection of bits and pieces.

Smovey Vibroswing
Nope, that’s not a typo. Susan Dietrich, our recent visitor from the American Parkinson Disease Association, learned about Smovey Vibroswing at a recent local support group and suggested I check it out. I’ve never heard of it before and don’t know how to describe it, so if you’re curious it’s probably best if you check out their website

Inova’s Parkinson’s and Movement Disorders team to speak on June 28
I hope you received the separate email that went out about this event. If not, please check in on our Community Events page. Apart from talking about a new App that can help people live well with Parkinson’s, there will be an extended question and answer session with Doctors Rogers and Falconer regarding all aspects of Parkinson’s care.

UStep Walker to Give Away
This is an original model and has been rehabilitated by the current owner. It does have the optional laser light. The center front wheel mechanism is non-functional due to a broken weld but works well inside and outside. If you are interested, please contact me at and I will connect you with the owner.

Two New Memory Cafes 
Two new Memory Cafes are starting this month! One starts in Arlington on June 14 and in Alexandria on June 26. I’ve attached flyers for each one – please click on the location closest to you.  1) Arlington        2) Alexandria

PD Summer School at Bastyr University, Seattle
This will be a unique week packed full of strategies and tips designed to improve the lives of individuals with Parkinson’s Disease, facilitated by Dr. Laurie Mischley in collaboration with Bastyr University. Deadline is today, June 15, but I thought I’d pass the message on in case anyone is interested. More information at

World Elder Abuse Awareness Day Event
In recognition of World Elder Abuse Awareness Day, Loudoun County Adult Protective Services & Loudoun County Area Agency on Aging present Paul Greenwood, Retired Deputy District Attorney, Former Head of Elder Abuse Prosecution Unit, San Diego DA’s Office.
When: Thursday, June 21, 2018, 9:00 am – 4:00 am
Where: Cascades Overlook Event Center
21453 Epicerie Plaza, Sterling, VA 20164
More information on our Community Events page or on the Loudoun Senior Interest Network website.

origami tomatoes!

origami tomatoes!

Hope to see you out and about soon!
Maybe at our cafes in Alexandria or Fairfax?


Living Your Best Life, Music & Memory, and June Cafes

Dr. James Parkinson tulip photo from Dartmouth-Hitchcock newsletter.

Last week when I wrote about the James Parkinson tulip, I was inspired by a photo taken by a person living with Parkinson’s that was featured in the Dartmouth-Hitchcock Parkinson’s Newsletter. We have since received permission to share the photo with you. Many thanks to Pat for sharing this lovely photo taken by her husband, Ralph. Pat wrote, “Last fall we planted a few James Parkinson tulip bulbs that we had ordered from the Maine Parkinson Society. As you can see, they are quite cheerful and a great addition to the garden.”

And thank you to Diane Sherman, for obtaining permission and also her wonderful newsletter! (More info here.) I look forward to it each week and my favorite part is the featured photo. If you have photos you’d like to share in our newsletter, Out & About with Parkinson’s, please send them to and I’ll include them in our newsletter and blog.

Live Your Best Life With Parkinson’s

Tim Hague, presenter and author of upcoming book Perseverence, will draw on his twenty-plus years of experience as a nurse, six-plus years living with Parkinson’s, and as the winner of the inaugural season of The Amazing Race Canada, to empower listeners to persevere.


Music & Memory at Insight Memory Care Center

Music and Memory

Insight Memory Care Center, our host for Cafe Fairfax, is featuring it’s Music and Memory program in two ways this month.

  1. Wednesday, June 20 from 5:00 pm  – 8:00 pm 
    The 6th Annual Music & Memory at the Silver Diner
    At: Merrifield Silver Diner, 8150 Porter Road, Falls Church, VA 22042
    You can support the program just by eating! A portion of the evening’s proceeds will go to Insight’s Music & Memory program. If you would like to donate new iPod shuffles or gently used iPods, they will be most welcome, as will Apple Store or iTunes gift cards. Click here for more information.
  2. Wednesday, June 27 from 1:00 pm – 3:00 pm
    Learn more about the Music & Memory program
    At: Insight Memory Care Center, 3955 Pender Drive, Suite 100, Fairfax, VA 22030
    Learn more about how to identify favorite artists, songs and genres of music and how to set-up and tailor and individualized playlist. This program will be helpful for professional caregivers and family members to use the program at home. Respite care may be available by request; please notify Insight when registering to confirm availability.

RSVP to be entered in the iPod giveaway online (click here) or to Christi at

June Cafes

Click here to check out what we have planned for our cafes this month and save the date and location for the cafe closest to you!

Hope to see you out and about soon! Cafe McLean is next Wednesday, June 13 – will we see you there?


A New Look for our Website

Parkinson Social Network

Parkinson Social Network has a new website!

I’m excited to announce that our new website is up! Our intention is for it to be constantly evolving as we share with you information about events, resources and services. Our focus is less on the medical, and more about how to make the most of our lives day to day.

We hope that you’ll check out our website when you have questions like these:
How do I stay active?
Check out our Keep Moving page to find local exercise classes or how you can enjoy Dance for PD® in your own home.
• Where is my nearest cafe?
Check out our Cafes page for locations and what they’re about.
• Where are the support groups in Northern Virginia?
Listed by county on our Support Groups page! There’s also a comprehensive list for support groups in other parts of Virginia.
• Looking for a list of books about Parkinson’s?
Angela Robb has kindly donated a list that she compiled for our For Your Bookshelf page.
• What kind of government assistance is available?
We’ve started a page listing resources and services offered by the various levels of government on our County/State/U.S. Gov’t page.

We’d love your help to build our website into the go-to resource for the Parkinson community. If there’s something you’re looking for and are unable to find, or if you’ve found a particular resource helpful and want to share with others . . . please contact me and we’ll do our best to include it.

Dr. James Parkinson tulips for your garden next spring

SomeDr. James Parkinson Tulip background: Around 1980, J.W.S. Van der Wereld, a Dutch horticulturalist with PD, developed this red and white tulip which he named the ‘Dr. James Parkinson’ tulip. In 2005, the red tulip was launched as the worldwide symbol of Parkinson’s disease. Variations of the red tulip are now used by many Parkinson’s disease organizations worldwide.

Click here to purchase Dr. James Parkinson tulips from the nonprofit Maine Parkinson Society. Your tulip bulbs will ship directly from the Netherlands and will arrive in mid-September, just in time for planting.
Order by July 1st for designated orders. Orders received in July and August are filled on a first-come, first-serve basis.

Thank you Diane Sherman from Dartmouth-Hitchcock for permission to share this information about these special tulips from your newsletter!
Here’s Diane’s contact info:
Diane L. Sherman, Coordinator,
The Parkinson’s Disease and Movement Disorders Resource Center
Dartmouth-Hitchcock Medical Center

Please contact Diane at to sign-up for her weekly e-newsletter.

Hope to see you Out & About soon!


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