Parkinson Social Network

Familiar Faces Out & About

familiar faces

I don’t have much to tell you about events I’ve been to this week, but there are lots of things happening! We’re busy planning our family caregiver appreciation lunch on November 10 (click here for details) and educational presentations (see below). And as always, if you’re looking for event information from previous newsletters, you’ll find them on our Community Events page.

Tomorrow, Saturday, October 13th is National Indie Author Day!Authors Karl & Angela Robb
Saturday, October 13 from 1:00 pm – 3:00 pm
Celebrate independent authors and their work at your participating local library!  Authors of all of genres are expected so, check your local library for the details and times.
In our area the Pohick Library (6450 Sydenstricker Rd, Burke) has graciously invited local authors Angela and Karl Robb to represent their books about Parkinson’s. If you are in the area and want to meet them or purchase a signed book, please stop by to see them.
Karl has been living with Parkinson’s for more than 30 years and together with his wife, Angela, is an upbeat and inspiring author and speaker. More information about their books on Karl’s blog and website, A Soft Voice in a Noisy World. Click here for more information.

Spend the day with other caregivers and come away with heaps of information!
Caregiver Bootcamp
Saturday, October 27, 9:30 am to 3:30 pm

At: Insight Memory Care Center
3955 Pender Drive, Suite 100, Fairfax, VA 22030
We know it can be hard as a busy caregiver to find all the information you need to best care for your loved one with dementia. Insight offers the Caregiver Bootcamp to help you learn more about essential caregiving topics, all in one place! Come and learn from experts in their fields and gain knowledge on the basics you need to know as a caregiver.
Sessions include:
Dementia Overview & Research with Dr. James Bicksel, INOVA Memory Center: Re:Cognition Health;
Financial Planning with Tom West, Signature Estate & Investment Advisors;
When Talking Isn’t Working with Toni Reinhart, Dementia Friendly America – Herndon and Comfort Keepers; and
Community Resources with Carrie Brill, Fairfax Area Agency on Aging.
A continental breakfast and lunch will be provided free of charge! Thanks to Arden Courts of Annandale and Fair Oaks, and Dementia Care Connections for sponsoring our breakfast and lunch.
RSVP: Register online, or contact Lindsey Vajpeyi at 703-204-4664 or

I am the speaker for this event!
Donuts and Other Things You Might Not Know About Parkinson’s
Monday, October 29, 1:30 pm – 3:00 pm
At: Tall Oaks Assisted LivingSonia at Cafe Fairfax
12052 North Shore Drive, Reston, VA 20190
When researching information about Parkinson’s disease, the results are fairly similar, focusing on a few symptoms and medical treatments, but as we quickly learn, there is so much more to this complex disease. Based on what I’ve learned from my friends living with Parkinson’s, I’ll provide a unique perspective of what life with Parkinson’s is like. I hope to show the human side of Parkinson’s for people who are unfamiliar with the disease.
Free and open to the public. Donuts and refreshments will be served.
Please RSVP to 703-834-9800 or

Hoping to see you out and about soon! Two cafes next week – Alexandria and Fairfax. Will we see you at one or both? Click here for details.


Caregivers, Congratulations and Community Events

Thank You with Tulip

Caregivers are very much on my mind this month. November is traditionally National Family Caregiver Month, but because November is also the start of The Holiday Season, when people are so busy, I thought we’d start early in order to give our family caregivers the recognition they deserve.

Caring for our Caregivers

Caring for our Caregivers
In addition to talking about caring at our cafes, we’re organizing an appreciation lunch for the family caregivers in our Parkinson community on
Saturday, November 10, 10:30 am – 1:00 pm.
Insight Memory Care Center has once again kindly offered their space to us, and 5 Star Home Health Care are providing refreshments and other goodies. Family caregivers male and female, past and present, are all welcome. Along with lunch we’ll have an engaging discussion with a panel of caregivers, door prizes, and other free gifties. You’ll have plenty of opportunities to meet new friends and catch up with old ones.
Seats are limited, so please register soon! We are also offering respite care (activities and lunch) in the room next door to the caregiver event, also with limited seats, and it would be a great help if you could register soon for respite care as well.
Click here to register!

Congratulations to Insight Memory Care Center’s Executive Director, Christi Clark!
Christi is the recipient of the 2018 Ruth Von Behren Award of the National Adult Day Services Association that recognizes her personal achievements and commitment to the field. Christi’s encouragement and support helped us turn our dream of cafes for the Parkinson’s community into a reality, and many of us are grateful for her kindness to us on a personal level as well. Thank you for all you do, Christi!

Here are some events and web events happening this month that might be of interest to you . . .

Learning and Living for Safer Generations
Saturday, October 13, 10:00 am – 2:30 pm

At: Inova Fairfax Medical Campus,
Physicians Conference Center, Lower Level
330 Gallows Road, Falls Church, VA 22042
Program includes Grandparenting 101 and Be Falls-Free at Home and in the Community. Click here for more information.

Impulse Control Behaviours and Creativity in Parkinson’s
Saturday, October 13. Livestreamed at 11:30 am

Free webinar offered by the Parkinson’s Voice Project
Impulse control behaviours are a common side effect of dopaminergic medication in Parkinson’s, characterized by their reward-based, repetitive natures and include pathological gambling, hypersexuality, compulsive shopping, binge-eating, and others. These impulsive behaviours can cause significant psychological, social, and even financial harm to both patients themselves and those close to them but have also been linked to productive characteristics such as creativity. Click here for more information and to register.

Caregivers’ Search for Meaning
Thursday, October 18, 2018, 7:00 p.m.
(The webinar also will be recorded for viewing later)
by Janet Edmunson, M.Ed. For family and professional caregivers
Webinar will be approximately 30-40 minutes in length and will also will be recorded for viewing later. Register online today by clicking:
Webinar Description: Viktor Frankl, a holocaust survivor, discovered that he could find meaning in the most miserable of conditions—in a concentration camp. This webinar will unearth what can we learn from his experiences that can help us with ours as caregivers. We’ll delve into how to explore meaning in our caregiver situations…no matter how difficult and sad they are. We’ll see how the search for meaning can buoy us up, even in the darkest times. And we’ll go beyond just the theory to reveal actual practical ways we can discover this meaning.

Safe Driving as You Age
Tuesday, October 23 from 10:00 am – 2:30 pm
At: Reston Community Center Hunter Woods
2310 Colts Neck Road, Reston
A FREE safe driving workshop featuring speakers, an exhibitor fair and lunch. Learn how to improve your health and well-being on and off the road. Explore safe and reliable transportation alternatives when it is time to hang up the keys.
Click here for more information.

Hoping to see you out and about soon! How about Cafe McLean next Wednesday?
Click here for more details . . .


Parkinson’s Trials & Studies, Cycling, and the Health Care Journey

part of Parkinson's SA 2018 art exhibit - Perspectives

The photo above is from Parkinson’s South Australia’s 2018 art exhibition, Perspectives. Aren’t the colors in the scarves and jewelry lovely?
Cafe Ashburn – Wednesday, September 26
At our Ashburn cafe this week one of the things we talked about was the Nilotinib trials and how hopeful we are for positive results. I was supposed to send you information about a website called PD Trials because it was a good place to find out information about all kinds of trials related to Parkinson’s. However, the website isn’t what it was. It looks like someone else is writing about Parkinson’s but from a different perspective. The major U.S. Parkinson foundations that are committed to research have information about their trials on their websites and are also looking for volunteers. I looked for a website that encompasses all the trials and found a government website – ( that you might want to look into. It “is a database of privately and publicly funded clinical studies conducted around the world.”

George Mason Study
We also talked about the George Mason research study examining movement efficiency and fatigability in individuals with Parkinson’s Disease. We’ve shared information about this study in previous emails and on our website, so If you’d like more information about this new study, please contact:
Mutasim D. Alharbi, Doctoral Student
Department of Rehabilitation Science, College of Health and Human Services
George Mason University
E-mail:   |   Phone: 703-479-8505

Parkinson’s Cycling Class
Krista is organizing a Parkinson’s Cycling Class at her location in Vienna and we’re passing on a message from her about her class. If you’re interested, could you please contact her at

Cycle ChiThe Parkinson’s Cycling Program is an indoor cycling class where individuals diagnosed with Parkinson’s Disease work in a group setting coached by a certified Parkinson’s Cycle Coach.  Cycling has shown to help in symptom management of the disease, provide a supportive group environment and help increase aerobic capacity and leg strength in riders over time.

The class is 60 minutes long with the ride length being 40 minutes with 20 minutes of time for stretching and socializing afterwards. Each participant will be asked to wear a heart rate monitor of their own or can rent or purchase one from the studio.

Participants will be required to complete an assessment with the certified Parkinson’s coach prior to being enrolled in this class and complete a health questionnaire and Medical Clearance Form before beginning the program.

In health,
Stay Happy, Feed Your Chi!

For those of you in and around Alexandria . . .
Taking the Health Care Journey: What You Need to Know.
Senior Services of Alexandria and Inova have teamed up to share information which will assist older adults in planning ahead to insure a better hospital stay, and a smooth transition after discharge! Join with representatives from Inova, SSA and local private service providers who will help you solve the puzzle that surrounds a hospitalization and the many options available afterwards.
This free event will be held on Friday, October 19 from 9:30 am – noon at Beatley Central Library, 5005 Duke Street. A light breakfast will be served.
Make reservations online at or call 703.836.4414 ext. 110.

I hope you’ve found the information in this email helpful and I’ll see you out and about soon!


It’s Getting Busy Around Here!

Happiness is being busy doing the things you love. TY

My thanks to for the above graphic! It’s been a busy week with lots more to come over the coming weeks. Here’s what we’ve been doing, followed by some of the events we have on our calendar.

Cafe Alexandria – Monday, September 17
Our visitor to Cafe Alexandria this month was Marney Kennedy, Art Docent with the National Gallery of Art. We were in for a special treat because Marney created a special program just for our cafe about the Art Scene in Alexandria.Alexandria Torpedo Factory

  • First of all, we learned about the Torpedo Factory and all the things they offer there. Originally, it really was a factory that manufactured torpedoes and one of our attendees told the story of neighbors who met while working in the factory. These days the Torpedo Factory is an arts center with working artists that you can visit. It’s also home of the Art League School which offers classes and workshops and open to anyone – beginners are warmly welcomed. If you click here, you can check out the Art League catalogue and enroll for classes.
  • The Athenaeum is home to the Northern Virginia Fine Arts Association. Their current exhibition, The Cabinet of Curiosities is free and open until November 11.
  • River Farm, on the banks of the Potomac River, is the home of the American Horticultural Society. People are encouraged to wander the grounds (sturdy shoes are recommended!) and to paint. The Estate House and grounds are also available as an event venue.
  • Some of the other places Marney told us about were Del Ray Artisans and Art on the Avenue.
  • In closing, Marney talked briefly about Kenneth Noland, Morris Louis, and Sam Gilliam of the Washington Color School, as well as Martin Puryear.

If you’d like to check out the Alexandria Art scene this weekend, here’s an event for you! The 16th Annual Alexandria King Street Art Festival is this weekend from Saturday, September 22, from 10 a.m. to 7 p.m., and Sunday, September 23, from 10 a.m. to 5 p.m. For more information about the King Street Art Festival, click here to visit the event webpage.

Last but not least, we have a reminder about the Paul Spring Parkinson Support Group that meets again on Tuesday, September 25 at 1:00 pm. Paul Spring exercise instructors will be talking with the group. Information about this support group and others in our area are on our website.

Cafe Fairfax – Wednesday, September 19
We had a surprise visit by Grace Lynch and Mary Jane Dye from Fairfax County’s Golden Gazette at Cafe Fairfax, so we talked about all kinds of services by Fairfax County’s Services for Older Adults. Grace sent me some links to share with you:

  • First off, you can click here to learn more about the Golden Gazette and to subscribe.
  • On page 16 of the Golden Gazette, you’ll find a column called 16 on 16 with updates about the Mature Living series on the Fairfax County Government Television Channel. Some of the topics include Depression in Seniors, Money Management, Protecting Yourself from Scams, Safe Driving and Travel Options, Seniors and Animals, Seniors Who Sing, and When Hospitalization Happens. Click here for the Channel 16 webpage.
  • One of the questions from our group was about how to obtain a large print version of the Golden Gazette. You can have it delivered to your Inbox as a PDF and then enlarge the font on your monitor, and it’s also available through Washington Ear, a free service for people who cannot effectively read print material.
  • In addition to the shows on Channel 16, Fairfax County’s 50+ program also produce podcasts on a variety of topics – too many to list (really!). Some of the more recent topics were Emergency Preparedness for Access and Functional Needs, Ollie Players, and Mental Health First Aid for Older Adults. Click here to check out the podcasts.
  • Our conversation about things we’d like to see invented led us to talking about a local “Shark Tank” type technology challenge where the participants are Fairfax area high school students. Click here to read more about the last challenge and how students can participate in it this year. Maybe you know a high school student who would be interested in participating? Or you have an idea for an invention?
  • These links together with event and service links are on
  • One more link . . . click here to follow Fairfax County 50+ on Facebook.

Event Announcements
It looks like things are really gearing up for a busy autumn! Here are some events to get you started. You’ll find these and more on our Community Events page.

Fair Oaks Folks (Parkinson’s Support Group) meets tomorrow!
Saturday, September 22 from 10 am to noon
At: Sunrise Senior Living at Fair Oaks,
2nd floor activity room, 3750 Joseph Siewick Drive , Fairfax
We do not have a program scheduled this month, but we look forward to spending time with friends and sharing our ideas for Fall activities and future programs.

Prevention & Alternatives to the Opioid Crisis
Thursday, September 27, 6:30 pm – 8:00 pm
At: Tall Oaks Assisted Living
12052 N Shore Drive, Reston, VA 20190
Speaker Beverly A. Whittenberg, M.D. of National Spine and Pain Centers will address prevention of the misuse of additive prescription pain meds and non-invasive alternative treatments. Light refreshments will be served.
Please RSVP to 703-834-9800 or

The 19th Beacon 50+ Expo
Sunday, September 30 from noon – 4:00 pm
At: Springfield Town Center, Springfield, VA
Exhibitors and resources, health screenings, entertainment, flu shots, giveaways and door prizes.
Also . . . Celebration of the Arts! Come meet the winners of our 50+ amateur art competition and see their winning works. Painting and drawing, sculpture, jewelry, pottery, mixed media, photography, poetry.

15th Annual Pancakes for Parkinson’s
Saturday, October 13, 9 am-2 pm, UVA South Lawn
Come celebrate UVA Homecoming Weekend and the beautiful fall weather at this outdoor brunch! Pancakes for Parkinson’s is an annual UVA tradition, featuring free pancakes and toppings and performances by various UVA music and dance groups. All donations will go to support Parkinson’s Disease research and the search for a cure through the Michael J. Fox Foundation.
More info can be found on our website at
Thank you to Susan Dietrich, Coordinator, American Parkinson Disease Association Information & Referral Center of Virginia for sending us information about this event. Susan also wrote: Whether local to Charlottesville or not, if you are up for a drive, this might be a good destination – for a good cause.

Paintings & Pairings
Thursday, October 25 from 5:30 – 9:00 pm
At: Fairview Park Marriott, 3111 Fairview Park Drive, Falls Church, VA 22042
Paintings & Pairings is a fantastic evening of paired hors d’oeuvres and wines, a delicious 3-course dinner, and exciting auctions and artwork for sale.
All proceeds from the event benefit Insight Memory Care Center, a nonprofit adult day health and resource center (and our Cafe Fairfax hosts!).
Click here to register.

Northern Virginia Dementia Care Conference 2018Northern Virginia Dementia Caregivers Conference: Finding Hope & Harmony in Caregiving
Monday, November 12, 2018 from 8:00 am to 3:30 pm
Location: First Baptist Church of Alexandria
2932 King Street, Alexandria, VA 22302
Speakers include Kim Campbell, wife of country/pop legend Glen Campbell. We hear tickets are selling fast so if you’d like to attend, you may want to register soon. Click here for more information.

I hope to see you out and about soon! In the following week we’ll be at Cafe Ashburn as well as some of the events listed above. Busy, busy!


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