Parkinson Social NetworkComing on May 15 at 11am ET – My Parkinson’s Journey – The Positive Side of Parkinson’s Disease with Sharon Krischer
Sharon Krischer was diagnosed with Parkinson’s Disease in October 2009 after several years of experiencing odd symptoms. Ever since she has read everything she could find on Parkinson’s with the goal of finding a way to move on – literally – and not be defeated by the disease. A busy person prior to her diagnosis, she continues to find ways to fit more into her days than most people.
Sharon writes a blog: “Twitchy Woman’s Adventures with Parkinson’s” to encourage the exchange of ideas and solutions with other whose lives have been affected. Since the start of the pandemic, Sharon has been hosting a twice monthly Zoom series for women with Parkinson’s called Sunday Mornings with Twitchy Woman. Most recently, Twitchy Woman sponsored 11 women to attend the World Parkinson Congress in Barcelona in July 2023. Sharon is a respected leader in the worldwide Parkinson’s community. Come and listen as Sharon shares her experiences and journey with Parkinson’s disease.
Join us on May 15th, 2024 at 11am ET (10am CT/ 9am MT / 8am PT).
April Staying Connected Newsletter
Let’s Talk about Social Connections
Tuesday, April 9
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)
Social connections are an important aspect to maintain while living with or caring for someone, with Parkinson’s. We will discuss the challenges and benefits of social connections. The goal of this program is to provide a safe space to discuss and share, both in a large group and in smaller breakout groups.
Click here to register: https://us06web.zoom.us/meeting/register/tZElcOqgrj4rE9yOuIZbZnpxG2n0ABamXjE4
Parkinson’s Home Adaptation and Exercise with Cassidy Gagnon PT, DPT, MS
Wednesday, April 17
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)
In this presentation, Ms. Gagnon will be talking about various adaptive equipment, self-care modifications, strategies to combat common symptoms, assistive devices, importance of exercise, and the different components of exercise to include. Her objective is to give everyone a better understanding of how to improve quality of life and independence in a person with Parkinson’s disease by creating a safe environment for them to participate in most effectively. She will also highlight the importance of exercise to maintain their desired level of independence and how to get that exercise into their weekly routine safely and effectively.
Click here to register: https://us06web.zoom.us/meeting/register/tZcrdOGoqzsvGNO-Br5Ra-kjiFJxFNzRaW6g
Watch and Discuss: Parkinson’s Disease: Management of Non-Motor Symptoms with Dr. Justin P. Martello MD, FAAN
Tuesday, April 23
10am ET – 11:30am ET
(9am CT, 8am MT, 7am PT)
Join us as we watch and discuss the recording of Dr. Martello’s recent presentation about non-motor symptoms management in Parkinson’s. He covers topics including: autonomic changes, Blood pressure and PD, Lewy Body Dementia, Sleep/sleep apnea, fatigue, medical marijuana, nutrition and supplements, pain, progression of symptoms, psychiatric issues, and more. This is a recording of his Maryland Association of Parkinson Support (MAPS) presentation.
Click here to register: https://us06web.zoom.us/meeting/register/tZwtduqppjsjH9KC6lC-HWNDBG6mvmnhj6ME
Mark Your Calendars!
We have two fabulous speakers coming soon, so save the dates for:
- May 15th, 11am ET- 12:20pm ET – Sharon Krischer, writer of “Twitchy Woman’s Adventures with Parkinson’s”.
- June 11 – Dr. Rick Jackomis, DDS will be back again to discuss dental care and Parkinson’s!
Happening In Our Parkinson’s Community…
- How’s Your Sleep? Help PD Avengers with their Sleep Survey for both people living with Parkinson’s and Carepartners/Caregivers.
- April 3, 1pm ET – Parkinson’s 101: What You and Your Family Should Know hosted by Parkinson Foundation – online/virtual registration link.
- April 6, 9am-2pm – All IN for Parkinson’s – TODOS JUNTOS por el Parkinson – In Person and bilingual educational event free of charge, sessions for those living with Parkinson’s and carepartners/family – Woodbridge, VA
- April 9, PRESS – Parkinson’s Roadmap for Education and Support Services
a Program for the Newly Diagnosed Spring 2024 click here to find out more and register. - April 11 – World Parkinson’s Day and WPD24 Live Stream
- The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
- First Wednesday of every month / 1:00 PM ET, online/virtual – Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease | Meeting ID: 892 0510 3333, Invite Link: https://apdaparkinson.zoom.us/j/89205103333
- Dance for PD – George Mason University GMU – visit their website for more details.
- The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
- Live in Maryland? MAPS has a very extensive support group listing on their website.
- Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
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