April Staying Connected Newsletter

Posted on April 2, 2024 by Angela Robb

Let’s Talk about Social Connections
Tuesday, April 9
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

Social connections are an important aspect to maintain while living with or caring for someone, with Parkinson’s. We will discuss the challenges and benefits of social connections. The goal of this program is to provide a safe space to discuss and share, both in a large group and in smaller breakout groups.
Click here to register: https://us06web.zoom.us/meeting/register/tZElcOqgrj4rE9yOuIZbZnpxG2n0ABamXjE4

Parkinson’s Home Adaptation and Exercise with Cassidy Gagnon PT, DPT, MS
Wednesday, April 17
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

In this presentation, Ms. Gagnon will be talking about various adaptive equipment, self-care modifications, strategies to combat common symptoms, assistive devices, importance of exercise, and the different components of exercise to include. Her objective is to give everyone a better understanding of how to improve quality of life and independence in a person with Parkinson’s disease by creating a safe environment for them to participate in most effectively. She will also highlight the importance of exercise to maintain their desired level of independence and how to get that exercise into their weekly routine safely and effectively.
Click here to register: https://us06web.zoom.us/meeting/register/tZcrdOGoqzsvGNO-Br5Ra-kjiFJxFNzRaW6g

Watch and Discuss: Parkinson’s Disease: Management of Non-Motor Symptoms with Dr. Justin P. Martello MD, FAAN
Tuesday, April 23
10am ET – 11:30am ET
(9am CT, 8am MT, 7am PT)

Join us as we watch and discuss the recording of Dr. Martello’s recent presentation about non-motor symptoms management in Parkinson’s. He covers topics including: autonomic changes, Blood pressure and PD, Lewy Body Dementia, Sleep/sleep apnea, fatigue, medical marijuana, nutrition and supplements, pain, progression of symptoms, psychiatric issues, and more. This is a recording of his Maryland Association of Parkinson Support (MAPS) presentation.
Click here to register: https://us06web.zoom.us/meeting/register/tZwtduqppjsjH9KC6lC-HWNDBG6mvmnhj6ME

Mark Your Calendars!

We have two fabulous speakers coming soon, so save the dates for:

May 15th, 11am ET- 12:20pm ET – Sharon Krischer, writer of “Twitchy Woman’s Adventures with Parkinson’s”.
June 11 – Dr. Rick Jackomis, DDS will be back again to discuss dental care and Parkinson’s!

Happening In Our Parkinson’s Community…

How’s Your Sleep? Help PD Avengers with their Sleep Survey for both people living with Parkinson’s and Carepartners/Caregivers.
April 3, 1pm ET – Parkinson’s 101: What You and Your Family Should Know hosted by Parkinson Foundation – online/virtual registration link.
April 6, 9am-2pm – All IN for Parkinson’s – TODOS JUNTOS por el Parkinson – In Person and bilingual educational event free of charge, sessions for those living with Parkinson’s and carepartners/family – Woodbridge, VA
April 9, PRESS – Parkinson’s Roadmap for Education and Support Services
a Program for the Newly Diagnosed Spring 2024 click here to find out more and register.
April 11 – World Parkinson’s Day and WPD24 Live Stream
The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
First Wednesday of every month / 1:00 PM ET, online/virtual – Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease | Meeting ID: 892 0510 3333, Invite Link: https://apdaparkinson.zoom.us/j/89205103333
Dance for PD – George Mason University GMU – visit their website for more details.
The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
Live in Maryland? MAPS has a very extensive support group listing on their website.
Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.

Category: 2024, cafes, community events, education, featured, online cafe, Online Resources, Parkinson's Awareness Month, Staying Connected Tags: blog, Caregivers, education, exercise, health, online cafe, Online Resources, online support, parkinson social network, parkinson's, parkinson's disease, side by side support groups online, support

March Staying Connected Newsletter

Posted on March 7, 2024 by Angela Robb

GIVE BACK TO THE COMMUNITY – BE A PSN BUDDY^sm

Would you be willing to help a fellow Person-with-Parkinson’s Disease? We hope you will.

Frequently PSN receives inquiries from those newly diagnosed with Parkinson’s Disease, as well as people who are not newly diagnosed, seeking to speak with a fellow Parkinsonian on a one-on-one basis.

If you wish to help your fellow Parkinsonians by engaging in a telephone conversation, please let the PSN Board know. With your permission, we will provide your telephone number and email address on request. We will, of course, let you know each time we share this information.

To participate, kindly email board@parkinsonsocialnetwork.org, or call our office at 571-286-5000.

This Month’s Events:

World Parkinson Congress (WPC)
Video Festival

Tuesday, March 12
10:00am – 11:30am ET
(9am CT, 8am MT, 7am PT)

Join us as we watch and discuss World Parkinson Congress (WPC) Video competition participant and winner videos. These videos are created by those living with Parkinson’s disease. We will view videos from the past 4 WPC Congresses.

Click Here to Register for this Event

Preparing for and Preventing Medical Emergencies

Wednesday, March 20
10:00am – 11:30pm ET
(9am CT, 8am MT, 7am PT)

Preparing for medical emergencies can help reduce the stress of these situations. What can you do to prepare for these situations? Join us as we discuss things you can do to prepare and possibly prevent these emergencies.

Click Here to Register for this Event

Living Well as a Carepartner –
Evening Event

Tuesday, March 26
7pm – 8pm ET
(6pm CT, 5pm MT, 4pm PT)

We welcome those who are caregivers and/or carepartners to join us for this evening meeting to discuss living well as a carepartner. We will discuss tips and strategies about how you, as a carepartner, can help yourself live well. We encourage you to participate and share in the discussion.

Click Here to Register for this Event