Parkinson Social NetworkOctober Staying Connected Newsletter
Join Parkinson Social Network for our next Online Saturday Brunch Webinar presentation:
NIH and its Role in Research and Treatment of Parkinson’s Disease
Saturday, October 30 10:30am EDT – 12pm EDT
Join the online webinar via Zoom on a computer, tablet, or phone.
Speakers Scheduled to Present:
Dr. Beth-Anne Sieber
Program Director in the Division of Neuro Science, National Institute of Neurological Disorders and Stroke
Dr. Debra Ehrlich
Chief of the Parkinson’s Disease Clinic at the NIH Clinical Center
Mr. Justin Cohen, Director of the Clinical Center Office of Patient Recruitment
Just a reminder that all in-person support events have been suspended due to the COVID-19 /Coronavirus pandemic. To support our Parkinson’s community, PSN offers three online (via Zoom) support options each month:
Caregiver’s Side by Side Support Group via Zoom*
Tuesday, October 12th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.
This discussion for caregivers will be an open discussion that is facilitated by Parkinson Social Network volunteers who have experience caring for those with Parkinson’s disease.
Click here to register for the Caregiver’s Support Group
Online Café
Benefits of Palliative and Hospice Care
Wednesday, October 20th
10am-11:30am EDT
Gerry Rebach, RN, BSN, MS, is a retired nurse, formerly certified in HIV/AIDS and Hospice and Palliative Care nursing.
Her most recent employment was in adult day care for older adults with cognitive and/or physical challenges (e.g. Parkinson’s Disease, dementias).
The talk will include definitions of palliative care and hospice care, explanation of eligibility for the Medicare hospice benefit, the more common symptoms managed with palliative care, medications and other modalities used for symptom management. Discussion will include decision making and what to expect from providers.
Click here to register for the Online Café
People with Parkinson’s Disease Support Group via Zoom*
Tuesday, October 26th
10:00am-11:30am EDT
This month’s topic: Procrastination is not your friend.
This will be an open discussion facilitated by Parkinson Social Network volunteers who either live with Parkinson’s or have experience caring for those with Parkinson’s.
Click here to register for the People with Parkinson’s Disease Support Group
Online Support Groups Sponsored by:
Research & Study Opportunity
You are also welcome to visit our Research & Study Opportunities page for more information about this study and others currently recruiting volunteers.
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If you have a diagnosis of Parkinson’s disease, you are invited to participate in a research study.
Sydney Richards, a Master’s student in the Genetic Counseling Training Program at the University of Maryland School of Medicine is conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing.
We need your help and want to hear about your experience and opinions! People who have and have not had genetic testing are encouraged to take part!
The study includes just a short, online survey that should only take about 15 minutes to complete. All answers are anonymous.
This study is voluntary, and your decision to participate will not affect your medical care.
If you are interested in learning more about this study, please use the link below by November 16th, 2021:
https://umaryland.az1.qualtrics.com/jfe/form/SV_bpEhuQEvdjAcoyG
We are Here to Help!
Are you searching for a resource or more information?
Parkinson Social Network volunteers can help!
Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org
Please consider a donation to support our programs. Parkinson Social Network is a 501(c)3 tax exempt organization. With no paid staff, we are a volunteer led organization with each volunteer having a personal connection to Parkinson’s disease.
Join us tomorrow/Tuesday September 28th at the Parkinson’s Support Group via Zoom at 10am – 11:30am EDT!
This month’s topic: Are you Tired? Sleep and sleep hygiene!
This month’s discussion topic is about sleep and sleep hygiene. Did you watch the YouTube video we highlighted at our Café this month? Do you have questions, suggestions, or just want to talk to others living with Parkinson’s about what they do for sleep issues? Then, please join us!
This is a facilitated discussion by volunteers who have are living with Parkinson’s or have cared for someone living with Parkinson’s disease. This will be an open share talking about expanding your opportunities. Use this link to register now for this online event.
This meeting will be held from 10am EDT until 11:30am EDT. You are welcome to join the discussion anytime and stay for as long as you can.
Registration is required. After registering, you will receive a confirmation email containing information about joining the meeting. To register, click here.
Our Side by Side Support groups are made possible by generous donations from our donors and the sponsored by of the following organizations:
Just Announced!
The School of Dance at George Mason University announces free Dance for Parkinson’s Disease (Dance for PD®) classes, offered this fall on their Fairfax campus. Classes Begin: this Friday, October 1st
Dance for PD is a movement-based class that begins slowly with warm-up movements and progresses to combinations of movements to a variety of uplifting music. The class offers not only physical benefits, but also reduces the dancers’ social isolation which is commonly associated with this neurological disease.
Click here for more information.
To register and learn more about this program, please email Assistant Professor Shaun D’Arcy at sboyleda@gmu.edu.
Lucy Bowen McCauley will be leading the classes offered at George Mason this fall. Lucy Bowen has been leading Dance for PD classes for thirteen years. BMDC is the only Dance Company that is a licensed affiliate of the Mark Morris Dance Group’s researched-backed Dance for PD program in the Mid-Atlantic region.
Parkinson Social Network 