Local, State, Regional & National Parkinson’s Community Resources

Below is a listing of local organizations who may have helpful information, support, and events, Local, regional, national, and international Parkinson’s organizations that have many programs online. We encourage you to visit these organization’s websites for up to date event information, webinars, support groups, and more.

Local Resources

Insight Memory Care Center provides resources to our community for Alzheimer’s disease and other memory impairments. Please visit their website for a detailed listing of services, workshops, education and support.

Women with Parkinson’s Support Group
1st Wednesday monthly from 1:00 pm to 2:30 pm
Meeting in-person in Reston, VA and virtually via Zoom
Contact via e-mail: womenwarriorspd@gmail.com and 1ww.pd777@gmail.com
Website: https://womenwithparkinsons.com

Parkinson Foundation of the National Capital Area (PFNCA)

INOVA Parkinson’s and Movement Disorders Center

Fairfax County Agency on Aging has many online resources including workshops, educational series, and more. Visit their website for more information.

The Virtual Center for Active Adults of Fairfax County is providing online virtual events to help find exercise, cultural and other activity resources during this coronavirus outbreak. They are offering a large variety of events online.

Virginia Parkinson’s Resources

There are many Parkinson’s Resources located around Virginia – many of which offer both online and in-person events.

APDA Virginia – Visit APDA Virginia’s website: https://www.apdaparkinson.org/community/virginia/ to get the latest event information – they offer in person and virtual/online education & support options, for those living with Parkinson’s and their carepartners.

APDA “Partners in Parkinson’s” – Partners in Parkinson’s
Discussion and support for care partners and families of people with Parkinson’s Disease.
Date/Time: First Wednesday of every month / 1:00 PM EST
Meeting ID: 892 0510 3333
Security: Waiting Room
Invite Link: https://apdaparkinson.zoom.us/j/89205103333

Power Over Parkinson’s – Hosts online and in-person education, exercise, and social events for people living with Parkinson’s and their carepartners/family. Visit their website: www.poweroverpd.org to get the latest listing of their schedule of events. They also have a fantastic POP Profile interview series available on YouTube.

Veterans Health Administration – Parkinson’s Disease Research, Education and Clinical Centers – This center is specifically for Veterans. They offer care, support, and education programs. You can read their most recent newsletter here, along with viewing the flyers by clicking the images below:

In 2001, the Veterans Health Administration (VHA) created six Parkinson’s Disease Research, Education and Clinical Centers (PADRECC) to improve care for veterans with Parkinson’s disease and other movement disorders. These specialty centers are located in Philadelphia, Richmond, Houston, Portland, San Francisco, and West Los Angeles.

Melvin Weinstein Parkinson’s Foundation – The Melvin Weinstein Parkinson’s Foundation purchases equipment and supplies necessary for Parkinson’s patients to sustain a safe and healthy environment and preserve their self-esteem and dignity.

VCU Parkinson’s and Movement Disorders Center

UVA Department of Neurology – Parkinson’s and Movement Disorders Center

Regional and National Parkinson’s Resources

Maryland Association of Parkinson’s Support (MAPS)

American Parkinson Disease Association – Their Education & Support page for lots of information available through their publications, webinars, forums, and much more!

Parkinson’s Foundation – Parkinson’s Foundation has a large collection of publications available for free and you’ll find a list of them here. Helpline 1.800.4PD.INFO (1-800-473-4636)
Their Hospital Care kit will help you plan for a hospital visit and avoid complications. It’s all free!

Young Onset Parkinson’s Network – Provides education, support, and information for those diagnosed with early onset / young onset Parkinson’s disease along with information carepartners/family.

Davis Phinney Foundation for Parkinson’s – “Our mission is to help people with Parkinson’s to live well today. To support that mission we offer specific programs, information and tools for living well.”

Michael J. Fox Foundation for Parkinson’s Research (MJFF) – “Our single, urgent goal: Eliminate Parkinson’s disease in our lifetime.” While the primary focus of this foundation is research, this website also features lots of good information on Living with Parkinson’s.

Parkinson Voice Project – Parkinson Voice Project has specialized in restoring the voices of those with Parkinson’s disease. We treat patients in our clinic, conduct research, and train speech-language pathologists in our unique therapy programs.

Brian Grant Foundation

Dance for Parkinson’s

Neuro Challenge Foundation for Parkinson’s

Other Parkinson’s Organizations, listed by state

The Carolinas
Parkinson Association of the Carolinas

Maine
Maine Parkinson Society

New Hampshire
Dartmouth-Hitchcock Parkinson’s Disease and Movement Disorders Resource Center, Neurology Resource Center

Washington state – also Montana, Alaska, Idaho, Oregon
Northwest Parkinson’s Foundation (NWPF) – “The mission of the Northwest Parkinson’s Foundation is to establish optimal quality of life for the Northwest Parkinson’s Community through awareness, education, advocacy and care.”