Parkinson Social NetworkNovember Staying Connected Newsletter
November Events:
Tuesday, November 12
12pm ET (11am CT, 10am MT, 9am PT)
*Please note meeting start time!*
Food for Thought Living with Parkinson’s – A Conversation with Denise and Bernard Coley
Wednesday, November 20
10am ET (9am CT, 8am MT, 7am PT)
Thanksgiving & Gratitude: An Open Discussion
Food for Thought Living with Parkinson’s – A Conversation with Advocates Denise and Bernard Coley
Tuesday, November 12, 2024
12pm ET (11am CT, 10am MT, 9am PT)
Click Here to Register for this Event!
Advocates Denise and Bernard Coley (co-chairs Black Support Group Leaders Alliance, members of PDMovers, co-chairs Special Interest Group-Black Diaspora) will join us for a couple’s conversation & discussion covering topics including: importance of communication, power of community advocacy, raising awareness & diversity, writing your own story, and living well with Parkinson’s! Denise and Bernard bring their optimism, experience, laughter, and support to share with our Parkinson’s community.
Thanksgiving & Gratitude: An Open Discussion
Wednesday, November 20
10am ET (9am CT, 8am MT, 7am PT)
Register for this Event!
Thanksgiving is nearing and for some of us it is easy to forget what we are thankful for.
This discussion is an opportunity for those with Parkinson’s disease and those who love those with Parkinson’s to share and discuss gratitude. We’ll discuss life lessons and lessons learned from living with years of challenges. This will be an open and facilitated discussion led by Karl Robb. Join us to share and connect with others to focus on and identify the positive elements in your life, despite Parkinson’s.
ICYMI: In Case You Missed It!
If you missed the airing of the recent presentation: Cardiac Manifestations of Parkinson’s Disease with Dr. Warren Levy MD, FACC click the play button above to view on our YouTube channel!
Happening In Our Parkinson’s Community…
- November 4 – Parkinson’s Education Day: Irvington VA – hosted by: APDA Virginia (in-person) – To register, visit this link.
- November 8 – Vienna Arts Society Arts Show benefitting APDA Virginia – in Person Vienna VA – For more information and to purchase tickets, visit this link.
- Richmond Veterans PADRECC newsletter contains A LOT of upcoming events information and programs, click here to read the November newsletter.
- The Peddling for Parkinson’s is available at YMCA locations, learn more by viewing this flyer.
- Our PD friends in Central/Orange VA had an article highlighting their support group in the Culpeper Star-Exponent. You can read the article here (Thanks John Giannico for providing).
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or 540-665-4634.
- Parkinson’s Speech therapy via teletherapy in VA and DC – The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu.
- APDA Virginia Roanoke conference was recorded and posted to YouTube. You can watch the recording via this link.
- University of Reading has developed a new online group program that aims to improve participants quality of life and help them get back in touch with what is important. To learn more visit their website by clicking here.
- The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
- Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
- The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
- Live in Maryland? MAPS has a very extensive support group listing on their website.
- Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
October Staying Connected Newsletter
This Month’s Events:
Specificity matters in exercise for Parkinson Disease. Learn more about PWR! Moves for PD with Kirsten Bodensteiner, PT, DPT, OCS
Tuesday, October 8
10am ET (9am CT, 8am MT, 7am PT)
Click Here to Register for this Event
People with Parkinson Disease know that exercise is important, but what kind?
Kirsten will explain how certain types of exercises, including PWR! Moves, can help those with PD. Be ready to try out some moves! Kirsten Bodensteiner has enjoyed helping people with Parkinson’s ever since getting her Doctorate in Physical Therapy from GWU. Kirsten is certified in PWR! Moves for PD, LSVT BIG, and Dance for PD. Kirsten combines her interest in neurologic PT with an orthopedic specialization, and works at Body Dynamics, Inc. in Falls Church, VA, where she also teaches balance and movement classes for older adults.
Click Here to Register for this Event
Watch and Discuss: Parkinson Foundation Expert Briefing – Addressing the Challenge of Apathy in Parkinson’s with Aaron Malina, Ph.D, (clinical neuropsychologist)
Wednesday, October 16
10am ET (9am CT, 8am MT, 7am PT)
Click Here to Register for this Event
We will watch & discuss the recording (~ 50 minutes) from the Parkinson’s Foundation with Dr. Aaron C. Malina, Ph.D., ABPP. After watching this recording, we will have a facilitated discussion. Here’s the description of the recording: Apathy can significantly impact the quality of life for people with Parkinson’s disease (PD). This invisible symptom can make it difficult to maintain interest in daily activities and to effectively manage PD symptoms. Apathy can be frustrating for people with Parkinson’s, care partners and loved ones, but understanding it as a symptom and finding ways to cope with it are key to ensuring a good quality of life.
Click Here to Register for this Event
Cardiac Manifestations of Parkinson’s Disease with Dr. Warren Levy MD, FACC
Tuesday October 22, 12pm ET (11am CT, 10am MT, and 9am PT)
Click Here to Register for this Event
Warren S. Levy is a board certified cardiologist with a special interest in coronary artery disease and risk modification including exercise and weight reduction. Dr. Levy is the immediate Past President and Chief and Medical Officer of Virginia Heart. He earned his medical degree with honors from the George Washington University School of Medicine, where he also completed his residency and fellowships in general and interventional cardiology. He became interested in medicine and cardiology while working his way through college at a Veterans Affairs hospital. During his career, he has specialized in both interventional and general cardiology. To “walk the walk” of good cardiovascular care, Dr. Levy is an avid runner and skier—as long as his knees hold up. He cherishes time with his family, who bring him much pride and fulfillment.
“The greatest joy and honor we have as physicians is to make a significant impact upon the lives of our patients and their families by improving their quality of life, their health and ultimately extending life through life-saving measures.”
Click Here to Register for this Event
ICYMI: In Case You Missed It!
If you missed the airing of the recent presentation: Why is it so hard to get a good night’s sleep with Parkinson’s disease? with Dr. Lawrence M. Stein, MD, FACP, FCCP, click the play button above to view on YouTube!
Happening In Our Parkinson’s Community…
- October 10 – Parkinson’s Town Hall – Tuckahoe Area Library, Henrico VA – Hosted by: Power Over Parkinson’s – Learn more and register here!
- 9/24 through 11/12, from 5:30 p.m. – 6:30 p.m. on Zoom!! PRESS – Parkinson’s Roadmap for Education and Support Services: A Program for the Newly Diagnosed from APDA Virginia – Visit this webpage for more details.
- October 12 – Parkinson Foundation Moving Day Richmond – Learn more here.
- November 4 – Parkinson’s Education Day: Irvington VA – hosted by: APDA Virginia (in-person) – To register, visit this link.
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or 540-665-4634.
- Parkinson’s Speech therapy via teletherapy in VA and DC – The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu.
- University of Reading has developed a new online group program that aims to improve participants quality of life and help them get back in touch with what is important. To learn more visit their website by clicking here.
- The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
- Dance for PD – George Mason University GMU has restarted for the Fall! Visit their website for more details.
- The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
- Live in Maryland? MAPS has a very extensive support group listing on their website.
- Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
GIVE BACK TO THE COMMUNITY – BE A PSN BUDDYsm
Would you be willing to help a fellow Person-with-Parkinson’s Disease? We hope you will.
Frequently PSN receives inquiries from those newly diagnosed with Parkinson’s Disease, as well as people who are not newly diagnosed, seeking to speak with a fellow Parkinsonian on a one-on-one basis.
If you wish to help your fellow Parkinsonians by engaging in a telephone conversation, please let the PSN Board know. With your permission, we will provide your telephone number and email address on request. We will, of course, let you know each time we share this information.
To participate, kindly email board@parkinsonsocialnetwork.org, or call our office at 571-286-5000.
Check out our YouTube channel to see our library of recorded presentations!
Parkinson Social Network is a Proud Partner of the PD Avengers.
PD Avengers is a patient-led organization, united in the purpose of ending Parkinson’s disease. PD Avengers raises awareness, engagement and hope. They add urgency to the cause of ending Parkinson’s disease.
Parkinson Social Network 