Parkinson Social NetworkIt’s Family Caregiver Month!
Tune in to Hear Parkinson Social Network / Fairfax 50+ podcast!
Carol Barrett and I discuss what caregivers need to know about the disease, including how to find services. We also discuss the unique role the Parkinson Social Network plays in helping people with the diagnosis, and caregivers cope and support each other. Our thanks to Grace Lynch, Manager, Communications and Community Outreach, Division of Adult and Aging Services for arranging this podcast for us!
Tune in at Fairfax 50+ Podcast. Find more Fairfax 50+ Podcasts.
** If you’d like to access the various podcasts and webinars I write about in these newsletters and you’re not sure how, we have help on the way! Grace will be visiting Cafe Fairfax on February 20 to give us a tutorial on how to access podcasts and webinars.
Caregiver Appreciation Luncheon – last call!
We still have a few seats left for our Caring for our Caregivers luncheon next Saturday, November 10, from 10:30 am to 1:00 pm. Don’t miss out! Click here to register and click here for more details.
Did you know you can support PSN when you shop on Amazon?
Are you an Amazon customer? Parkinson Social Network is registered with AmazonSmile. When you shop on AmazonSmile, 0.5% of the price of eligible purchases will be donated to PSN. Click here to connect with AmazonSmile and designate Parkinson Social Network as your favorite charity. Through to 11:59 pm tonight, A
mazon will donate 5% – 10 times their usual rate! Thank you for your support!
Staying Positive When You Have Parkinson’s
Thank you, Karen, for sharing this inspiring article with us. Click here to read it on the ParkinsonsDisease.net website. Two of our local authors, Karl and Angela Robb, are also regular contributors.
Exciting News from Rock Steady Boxing Nova – now in Sterling!
And now a message from Alec . . .
We have a location! We will be at:
Disciple MMA Academy
21620 Ridgetop Circle Unit 100A, Sterling, VA 20164
It is a great gym with lots of space, lots of parking, heavy bags, big locker rooms, a ring, aka it is perfect! I am very excited for you all so lets get this thing started.
– I’ll be able to use the Loudoun gym starting next week and will start doing assessments immediately. Here is the link to schedule an assessment for next week (Nov 5th) at the Loudoun location.
https://calendly.com/rsbnova/assessment-loudoun/11-05-2018?back=1
– I want to get all the assessments done so we can start class on Monday November 12th!
Thank you all for your patience and I hope to see you soon!
Alec Langstein, Owner/Coach
Rock Steady Boxing NOVA
571.730.8553 | nova@rsbaffiliate.com | http://rocksteadynova.com/
Parkinson’s Cycle Class at Cycle Chi – starting next week!
When: Tuesdays and Thursdays 1:30pm – 2:30pm
Where: Cycle Chi, 211 Mill Street, NE, Vienna, VA 22180 (located next to Pennywise Thriftshop).
Requirements: A pre-class assessment is required to take the class to ensure safety. Cost is only $10 (first class fee). Participant must be able to get on and off bike with minimal assistance and be able to pedal safely. Assessments may be scheduled via email to Krista@cyclechi.com or by calling Krista at 703-303-0600 and will take 10-20 minutes.
Scheduling: Classes are drop in, but it is highly recommended that you reserve your bike in advance to ensure you have a spot in the class. Space is limited to 20 bikes and without a reservation you are not guaranteed a spot. Reservations can be made online at www.cyclechi.com or by calling Krista 703-303-0600 (please call more than 1 hour prior to class starting).
Cost: Cost will be the same as other cycle class passes which can be purchased online or in the studio. Class packs do not expire and can be used at any time.
$21 – Single Class Pass
$100 – 5 Class Pack ($20 per class)
$190 – 10 Class Pack ($19 per class)
$360 – 20 Class Pack ($18 per class)
For more information or questions please contact Krista via email krista@cyclechi.com or phone 703-303-0600. Hope to see you there for a fun workout!
Dance for PD®
*Update 11.1.18* Dance for PD® has released it’s latest streamed class – a June 2018 class taught by Mark Morris Dance Group company member Pamela Quinn. Click here to view and move to the music. There’s a new class available every month, usually with a different teacher, too. To check out their archive and keep on movin’ to the music click here.
Financial Preparedness: Be Sure to Save for an Emergency
Thank you, Arlene, for reminding me about Fairfax County’s Office of Emergency Management (OEM) Emergency Preparedness Newsletter. One particular article worth reading is Financial Preparedness: Be Sure to Save for an Emergency. Here’s one of the suggestions:
“It is important to have small bills on hand because ATM’s and credit cards may not work during a disaster when you need to purchase necessary supplies, fuel or food.” Click here to read this article in a blog post.
** In December we’ll be visited by Courtney from the OEM at Cafe Fairfax.
Hoping to see you out and about soon!
Cheers,
Sonia
email: Sonia@ParkinsonSocialNetwork.org
Rolling Over in Bed
In last week’s edition of the Parkinson’s Newsletter from Dartmouth-Hitchcock (click here to subscribe) ther was a piece on rolling over in bed because there are so many good suggestions. We have permission from editor Diane Sherman to reprint for you.
Rolling Over in Bed
People with Parkinson’s typically have difficulty getting a good night’s sleep for a variety of reasons, including being unable to roll over in bed. If you are having this problem, please talk with your doctor to ensure that you have sufficient night-time PD medication to allow you to move in bed. You might also ask your doctor for a referral to a physical therapist or occupational therapist who can help you by
- breaking this complex movement down into steps, and
- providing exercises to strengthen the muscles needed to accomplish these tasks.
Exercises to improve bed mobility
Helpful videos:
- Parkinson’s Regeneration Training®: Learning to roll
- Physical Therapy Nation: Bed Mobility: How to Roll Over and Sit Up from Lying Down
- Parkinson’s Wellness Recovery (PWR! Moves): Help for Rolling Over in Bed
You might consider adding in mobility aids (available from many suppliers, including those at links below):
- low-friction pad (or use satin sheet across middle of bed) or silk pajamas
- bed rail
- bed trapeze
- bed pull-up (or rope-ladder)
- Friendly Bed Independent Living Modular Bed Rail System
Video demonstration of Friendly Beds Independent Living Modular Bed Rail System. (Friendly Beds won the Benjamin Rose Institute on Aging‘s 2016 Innovation in Caregiving Award.)
Some news on the science of rolling over from Physics Central: What Rolling Over in Your Sleep Can Say about Your Health. The article cites the work of a team of Japanese physicists studying “turnover dynamics” in healthy controls and people with PD.
“The researchers proposed that healthy people roll over in two distinct ways, which they call “modes” – a quick mode that consists of rolling every ten seconds or less (not necessarily rolling over entirely, but shifting a bit, with at least a slight rotation), and a slow mode that happens every hundred seconds or more.”
The quick mode of rollover didn’t change much in PD, but the slow mode decreased with increasing severity of PD, as illustrated in the dramatic figures in the research paper.
“Analysis of the data suggests a close association among individuals’ neurological conditions, sleep quality, and statistical properties of the turnover dynamics.”
Davis Phinney launches it’s first official season of The Parkinson’s Podcast
There are quite a variety of topics such as The Neuroscience of Parkinson’s and Advice for the Newly Diagnosed to help you live well with Parkinson’s. Episode 104, uploaded just this week, has Advice for Parkinson’s Care Partners with Connie Carpenter Phinney – click here.
You can either listen to them directly from the episode page on their website, or you can go to iTunes or SoundCloud or wherever you listen to podcasts and listen from there. If you’ve never listened to a podcast before and aren’t sure how to do it, this article gives a great step-by-step tutorial.
Parkinson Social Network 