Parkinson Social NetworkMarch Staying Connected Newsletter
| Events in March: Wednesday, March 8th, 7pm PD Avengers – Global Alliance to End Parkinson’s Special Evening Event! Wednesday, March 15th 10am How to Protect Yourself & Your Loved Ones from Scams – Fairfax County Silver Shield Tuesday, March 28th 10am What is a PADRECC and How Does it Support Veterans with Parkinson’s Disease? |
PD Avengers – The Global Alliance to End Parkinson’s w/ co-founder, Larry Gifford
Wednesday, March 8th
7:00pm – 8:30pm ET
PD Avengers is a global alliance of people with Parkinson’s, our partners and friends, standing together demanding change in how the disease is seen and treated.
PD Avengers adds urgency to the cause of ending Parkinson’s disease focusing on supporting people with Parkinson’s and other PD organizations through wellness, advocacy and research collaborations.
In this evening event, co-founder Larry Gifford will share with us information about how the PD Avengers are working worldwide to end Parkinson’s disease and how you can get involved!
How to Protect Yourself & Your Loved Ones from Scams- Fairfax County Silver Shield w/ Melissa Smarr MPA, CPM
Wednesday, March 15th
10:00am – 11:30am ET
Melissa will be sharing how you can protect yourself and your loved ones from all forms of scams.
She is a facilitator of the multi-agency initiative, the Silver Shield Anti-Scam Campaign, which focuses on educating older residents about how they can protect themselves from scammers.
What is a PADRECC?
Supporting Veterans with Parkinson’s
w/ Jessica Kaplan, Clinic Nurse Coordinator
Tuesday, March 28th
10:00am-11:30am ET
Did you know that the Veterans Administration has 6 specialized Movement Disorder clinics around the US and there’s one in Virginia? Jessica will share information about these clinics called PADRECCs, how these clinics help Veterans living with Parkinson’s Disease and the community as a whole.
In Case You Missed It!
We posted an article detailing the videos, information links, and more from our January and February meetings. Click this link to view that article now.
In Our Parkinson’s Community…
- STARTING THIS FRIDAY! George Mason University Dance for PD program will kick off their free Spring sessions Each Friday at 1pm-2:15pm starting March 3 – April 21, for more information and to register visit dance.gmu.edu/about/dance-pd
- New! online support group for Veteran’s with Early Onset Parkinson’s Disease through Richmond VA/PADRECC, for more info, download this flyer!
- Virginia Lifespan Respite Voucher Program This program provides reimbursement vouchers to Virginia primary caregivers for the cost of temporary, short-term respite care provided to individuals, of any age, with a documented disability or medical condition. Visit this link more information about the program.
- Learn more about The National Plan to End Parkinson’s Act. This video gives you more information about this historic legislation. You can learn more here about the bill and urge Congress to support the plan.
January and February Event Summary
If you missed one of our events in January or February, here’s a summary of the links & information:
January 2023
Conversation with Dave Iverson author of Winter Stars – Davis Phinney Foundation
Anna Grill – Founder, Young Onset Parkinson Network – Recording coming soon!
February 2023
Clinical Trials Participation w/ Bob Pearson – If you would like to see a recording of this event, please send email to David.Baum@parkinsonsocialnetwork.org. Bob is also a volunteer helping veterans living with Parkinson’s to find Veterans Administration resources. Please call or text Bob at 703-402-3498 for assistance.
Seeing Clearly with Parkinson’s Disease: Vision Changes w/ Dr. Dan Gold (Assistant Professor of Neurology, Ophthalmology, Neurosurgery, Otolaryngology – Head & Neck Surgery, The Johns Hopkins Hospital) https://youtu.be/opF-iLwUa1E
If you would like to request copies of the slides that are shown during Dr. Gold’s presentation, please email David.Baum@parkinsonsocialnetwork.org .
Parkinson Foundation also included this link to their website page on Vision Changes: https://www.parkinson.org/understanding-parkinsons/non-movement-symptoms/vision
North American Neuro-Ophthalmology Society (NANOS) https://www.nanosweb.org/ mentioned by Dr. Gold
Parkinson Social Network 