July Staying Connected Newsletter & Events

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What Inspires You?
Wednesday, July 16th
10am-11:30am ET (9am CT, 8am MT, 7am PT)

Do you ever find yourself moved by a story, a quote, an idea, or a moment of kindness? Inspiration is all around us, waiting to be uncovered and shared. We invite you to be part of a unique discussion where we’ll gather to explore what truly inspires us. Meet like-minded people who are eager to listen and share their own sources of inspiration. Discover new perspectives and fuel your own creativity by hearing what lifts others up. Your story could be the spark that lights someone else’s fire! Bring an open mind—and maybe a quote, object, or memory that inspires you. Whether you’re ready to share or simply wish to listen and absorb, your presence will help shape a memorable and uplifting conversation.


Evening Carepartners Open Discussion
Tuesday, July 22nd
7pm-8pm ET 
(6pm CT, 5pm MT, 4pm PT)

Our Carepartner Discussion Group is a group for those caring for someone living with Parkinson’s disease: caregivers, carepartners, family members, and friends. You are welcome to come anytime and stay for as long as you can.


Research Study Helps Family Caregivers PERSEVERE

PERSEVERE is a national study funded by the National Institutes of Health, led by Dr. Jori Fleisher at Rush University Medical, which is testing an educational program for family caregivers of people with Parkinson’s Disease who are experiencing changes in memory & thinking. PERSEVERE will test whether a disease-specific, caregiver-centered educational intervention improves caregiver knowledge, confidence, strain, and health outcomes – and whether it helps people living with Parkinson’s Disease, too.

Family caregivers will receive weekly educational guidance through a 12-week curriculum with resources and activities. All participation is virtual and scheduled when it works for you. There are no in-person visits and the person with Parkinson’s does not participate—just caregivers. Caregivers fill out online surveys and assessments at baseline and every two weeks throughout their involvement in the study, including a six-month follow-up period after the 12-week curriculum.  

 Interested in learning more? Visit https://redcap.link/PERSEVERE1 to watch a video providing more information about the study, hear testimonials from prior PERSEVERE study participants, and complete the screening survey to see if you are eligible. 


In Our Community…



The Parkinson's Plan book image 
We’re thrilled to share a 15% discount code for anyone who preorders the book through Bookshop.org, use code THEPLAN at checkout. This code is valid on print and U.S. orders only. Code expires August 19, 2025!

Ray Dorsey & Michael S. Okun’s The Parkinson’s Plan is a prescriptive, research-backed guide that empowers readers to take action, whether they are newly diagnosed, long-time patients, caregivers, or loved ones wanting to lower their risk. Drs. Dorsey and Okun are two of the most trusted voices in the Parkinson’s field, with over 40K combined followers across their newsletter and social media.

Their mission is to make Parkinson’s a rare disease and The Parkinson’s Plan is the next step in that mission.

·       Learn how your food, water, air, and lifestyle choices play a direct role in prevention
·       Understand the “Parkinson’s 25”, the most detailed checklist ever created to reduce risk
·       Discover the latest scientific breakthroughs and practical treatment options
·       Hear from world-renowned experts, doctors, and thought leaders in Parkinson’s research.

SPECIAL OFFER: A 15% discount code for anyone who preorders the book through Bookshop.org, use code THEPLAN at checkout. This code is valid on print and U.S. orders only. Code expires August 19, 2025!

June Staying Connected Newsletter & Events

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Watch and Discuss

Watch & Discuss: Mental Wellness Essentials for Parkinson’s
Tuesday, June 10th
10am-11:30am ET (9am CT, 8am MT, 7am PT)

We will be watching the recording of a Davis Phinney Foundation Live Well Today webinar: Mental Wellness Essentials for Parkinson’s with Dr. Greg Pontone.
In this recording, Dr. Greg Pontone—renowned Division Chief and Professor of Aging, Behavioral, and Cognitive Neurology at the University of Florida—dives deep into the mental health aspects of Parkinson’s. From anxiety and depression to apathy and anger, Dr. Pontone breaks down the reasons behind these symptoms, their impact on daily life, and actionable strategies to manage them effectively.
Don’t miss this opportunity to gain knowledge, hope, and actionable advice from a leading expert in the field! Empower yourself with insights that can transform your mental wellness journey. After watching the recording, we will have a live facilitated discussion.


Join the Conversation: A Special Open Forum
Wednesday, June 18th
11am-12:30pm ET 
(10am CT, 9am MT, 8am PT)

We want to hear from you! You are invited to a lively and engaging open discussion led by the inspiring Parkinson’s advocates, Denise and Bernard Coley. After their highly praised presentation in November 2024 (you can watch the recording on our YouTube channel), the Coleys are returning by popular demand to host a dynamic and inclusive forum.
This is your chance to ask questions, share your thoughts, and connect directly with the Coleys and the PSN Board of Directors. Whether you have ideas, concerns, or simply want to listen and learn, your voice matters—and we want to know what’s on your mind about Parkinson’s.
Don’t miss this exciting opportunity to engage with two vibrant and passionate leaders in our community. Come join us and be part of the conversation. We can’t wait to hear from you!
(Note: This is not a forum for specific or personal medical questions. Please share your personal medical questions with your neurologist/movement disorder specialist or medical provider.)