Parkinson Social NetworkFinding Education, Support and Information Online at Home 3/18/20
| We at Parkinson Social Network are working to keep you up-to-date with online events to support our community. Here are a few events coming up this week: TODAY! March 18 10am EDT Ask The Experts: Coronavirus and Parkinson’s Disease on Facebook LIVE! https://www.parkinson.org/get-involved/events/2020/Ask-Experts-Coronavirus or https://www.facebook.com/events/629737527603685/ Hosted by the Parkinson Foundation March 19 12pm EDT Information on Coronovirus for the Parkinson’s Community https://www.michaeljfox.org/webinar/information-coronavirus-parkinsons-community?os_cid=tw-a1b1R000008uLMi Hosted by the Michael J Fox Foundation for Parkinson’s Research March 21 9am-1pm The Victory Summit – Baton Rouge – Online Only Event (Registration required) https://www.davisphinneyfoundation.org/events/victory-summit-baton-rouge/ Hosted by the Davis Phinney Foundation for Parkinson’s |
| Staying Healthy from APDA/Hampton Roads and American Parkinson Disease Association (APDA) Many thanks to our colleagues at the APDA/Hampton Roads and the APDA national organization who sent the information out regarding COVID-19: You can also learn more about the Parkinson’s community and COVID-19 from the APDA here. In the meantime, it is important to think about staying healthy in every sense of the word. Times like these help us to reflect on how to truly live well. You will likely find yourself staying home much more, but there are a number of ways to make sure that you stay well physically, emotionally, and mentally. Here are a few resources that may be helpful to you in the coming weeks: Stay well physically: There are many outlets telling us how to keep from getting sick (wash your hands!), but have you thought about keeping fit while tai chi or boxing sessions are cancelled? The American Parkinson Disease Association offers a booklet of exercises that you can do in the comfort of your own home. You can find the booklet online here. Stay well emotionally: Have you been involved in a local support group? Maybe now is the time to set up an old-fashioned phone tree to have a chat with someone from your group. If you’re not in a support group, try reconnecting with someone you haven’t spoken to in a while. If you prefer the online route, or would like to supplement your other activities, try the APDA’s online Smart Patients portal. You can join a chat and communicate with others going through some of the same things you are. Stay well mentally: If you were hoping to attend an upcoming educational program that has been postponed, or are looking for additional information on a specific topic, the APDA has a number of free webinars available online. Dr. Rebecca Gilbert’s blog is also a great resource to learn more on specific topics of interest. |
| Disclaimer: The inclusion of announcements, logos or website links included in this newsletter or on our website does not constitute an endorsement by the Parkinson Social Network of the products, programs or services. |
Finding Education, Support and Information Online at Home
Since Parkinson Social Network in-person events have been temporarily cancelled due to COVID-19, we compiled some links to online events and resources that you can access from your computer, in your own home.
Upcoming Online Parkinson’s Events
March 17 – Expert Briefing: Food, Water & Supplements: Does Nutrition Play a Role in PD Symptoms or Progression?
https://zoom.us/webinar/register/WN_R2aio-HtSVSDH8uf7CbwIw
Hosted by the Parkinson Foundation
March 18 – Coronavirus and Parkinson’s Disease
https://www.parkinson.org/get-involved/events/2020/Ask-Experts-Coronavirus
Hosted by the Parkinson Foundation
March 23 – Online Workshop Series – Mindfulness
Parkinson Society British Columbia
https://www.parkinson.bc.ca/events/education-events/mindfulness-workshop-series-registration/
April 6 – Pain and Parkinson’s with Dr. Janis Miyasaki https://www.davisphinneyfoundation.org/resources/webinars/
Hosted by the Davis Phinney Foundation
April 29 – Spotlight on Parkinson’s Disease: What’s New in Brain Health? https://engage.vevent.com/index.jsp?eid=7988&seid=518
Hosted by the American Parkinson Disease Association (APDA)
Online Webinar Archives:
Watch anytime and these cover a variety of topics both for those living with Parkinson’s and those caring for someone with Parkinson’s.
Davis Phinney Foundation: https://www.davisphinneyfoundation.org/resources/webinars/
American Parkinson Disease Association (APDA): https://www.apdaparkinson.org/webinar/
Parkinson Voice Project: Online Lecture Series
https://www.parkinsonvoiceproject.org/Lectures#Past-Lectures
Northwest Parkinson’s Foundation – Parkinson’s LIVE!
Archiveed sessions which include topics: Mindfulness, Yoga, FeldenKrais, Ask the Expert and Parkinson’s Education Hour:
https://nwpf.org/participate/parkinsons-live-online-programs/
Podcasts/Online Audio programs covering Parkinson’s topics:
Wisconsin Parkinson Association: https://www.blogtalkradio.com/wiparkinson?utm_source=WPA+GENERAL+EMAIL+LIST&utm_campaign=0aebad0aa5-DecemberEnews_COPY_01&utm_medium=email&utm_term=0_86f02135a4-0aebad0aa5-308655073
When Life Gives You Parkinson’s – Larry Gifford – Podcast/online program
https://podnews.net/podcast/1404983468
Davis Phinney Foundation – Podcasts archive – https://www.davisphinneyfoundation.org/resources/parkinsons-podcast/
Caregivers Webinars/Articles
Fairfax County – Agency on Aging – Past Caregiver Webinars – https://www.fairfaxcounty.gov/familyservices/older-adults/family-caregiver-support-programs
Free Caregiver Webinar Recordings – Janet Edmondson – http://www.janetedmunson.com/edm_events.html
Davis Phinney Foundation – Caregiver articles and resources https://www.davisphinneyfoundation.org/care-partners/
Family Caregiver Alliance archived webinars
https://www.caregiver.org/fca-webinars
US Department of Veterans Affairs – VA Caregiver Support
https://www.caregiver.va.gov/
Online Resources, Information and Community Support
ParkinsonsDisease.net – Available online at www.parkinsonsdisease.net or on Facebook https://www.facebook.com/ParkinsonsDiseaseDotNet/
Parkinson’s Foundation – Includes Helpline, Podcasts, Webinars, Expert briefings, free Educational books.
https://www.parkinson.org/Living-with-Parkinsons/Resources-and-Support
Veterans Health Administraion – My Parkinson’s Story – YouTube videos https://www.youtube.com/playlist?list=PL3AQ_JVoBEyxd5tkfQG-S3p_SDYBFtJ6c
Online Parkinson’s Exercise Videos
NeuroFit BC Parkinson’s Exercise Special Series
https://www.youtube.com/watch?v=TCIUh9KshDs&feature=youtu.be
Parkinson Wellness Recovery
https://www.youtube.com/user/exercise4brainchange/videos
Disclaimer:
The inclusion of announcements, logos or website links included in this newsletter or on our website does not constitute an endorsement by the Parkinson Social Network of the products, programs or services.
Parkinson Social Network 