Parkinson’s Trials & Studies, Cycling, and the Health Care Journey

part of Parkinson's SA 2018 art exhibit - Perspectives

The photo above is from Parkinson’s South Australia’s 2018 art exhibition, Perspectives. Aren’t the colors in the scarves and jewelry lovely?
Cafe Ashburn – Wednesday, September 26
At our Ashburn cafe this week one of the things we talked about was the Nilotinib trials and how hopeful we are for positive results. I was supposed to send you information about a website called PD Trials because it was a good place to find out information about all kinds of trials related to Parkinson’s. However, the website isn’t what it was. It looks like someone else is writing about Parkinson’s but from a different perspective. The major U.S. Parkinson foundations that are committed to research have information about their trials on their websites and are also looking for volunteers. I looked for a website that encompasses all the trials and found a government website – ClinicalTrials.gov (https://clinicaltrials.gov/) that you might want to look into. It “is a database of privately and publicly funded clinical studies conducted around the world.”

George Mason Study
We also talked about the George Mason research study examining movement efficiency and fatigability in individuals with Parkinson’s Disease. We’ve shared information about this study in previous emails and on our website, so If you’d like more information about this new study, please contact:
Mutasim D. Alharbi, Doctoral Student
Department of Rehabilitation Science, College of Health and Human Services
George Mason University
E-mail: malharb4@masonlive.gmu.edu   |   Phone: 703-479-8505


Parkinson’s Cycling Class
Krista is organizing a Parkinson’s Cycling Class at her location in Vienna and we’re passing on a message from her about her class. If you’re interested, could you please contact her at krista@cyclechi.com?

Cycle ChiThe Parkinson’s Cycling Program is an indoor cycling class where individuals diagnosed with Parkinson’s Disease work in a group setting coached by a certified Parkinson’s Cycle Coach.  Cycling has shown to help in symptom management of the disease, provide a supportive group environment and help increase aerobic capacity and leg strength in riders over time.

The class is 60 minutes long with the ride length being 40 minutes with 20 minutes of time for stretching and socializing afterwards. Each participant will be asked to wear a heart rate monitor of their own or can rent or purchase one from the studio.

Participants will be required to complete an assessment with the certified Parkinson’s coach prior to being enrolled in this class and complete a health questionnaire and Medical Clearance Form before beginning the program.

In health,
Krista
krista@cyclechi.com
Stay Happy, Feed Your Chi!

http://cyclechi.com/


For those of you in and around Alexandria . . .
Taking the Health Care Journey: What You Need to Know.
Senior Services of Alexandria and Inova have teamed up to share information which will assist older adults in planning ahead to insure a better hospital stay, and a smooth transition after discharge! Join with representatives from Inova, SSA and local private service providers who will help you solve the puzzle that surrounds a hospitalization and the many options available afterwards.
This free event will be held on Friday, October 19 from 9:30 am – noon at Beatley Central Library, 5005 Duke Street. A light breakfast will be served.
Make reservations online at www.wseniorservicesalex.org or call 703.836.4414 ext. 110.

I hope you’ve found the information in this email helpful and I’ll see you out and about soon!

Cheers,
Sonia
email: Sonia@ParkinsonSocialNetwork.org

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