Parkinson Social NetworkJuly Staying Connected Newsletter
Watch & Discuss:
Dr. Maria De Leon
Webinar Recording
Tuesday, July 23
10:00am – 11:30am ET
(9am CT, 8am MT, 7am PT)
Click Here to Register for this Event!
Join us as we Watch & Discuss the webinar recording of Dr. Maria De León, certified retired Movement disorder specialist, author of Parkinson’s Diva shares her personal journey with Parkinson’s disease as a physician, caregiver, and person with Parkinson’s. She also provides simple tools that anyone living with a chronic condition can benefit. Dr. De León also shares her wisdom and lessons learned living with Parkinson’s, caring for her grandmother who had Parkinson’s, how she too has had challenges with the medical community in understanding her diagnosis, and her personal philosophy in living well with Parkinson’s disease.
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Evening Carepartners Discussion
Tuesday, July 30
7:00pm ET – 8:00pm ET (6pm CT, 5pm MT, 4pm PT)
(evening event)
Click Here to Register for this Event
Our Carepartner Discussion Group is a group for those caring for someone living with Parkinson’s disease: caregivers, carepartners, family members, and friends. You are welcome to come anytime and stay for as long as you can.
Click Here to Register for this Event
Special Highlights in July:
On July 2nd, President Biden signed the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act! For more information, read the press release on Rep. Jennifer Wexton’s website.
- If you participated in the PD Avengers SLEEP study, the results are in and you can read them here.
- The University of Reading has released a caregivers/carepartners research study for a new online reflective writing tool. We’ve just listed their research study on our Research Studies page.
- APDA Virginia has launched their YouTube channel, where you can find recordings of recent webinars and conferences.
- Poet and artist, John Giannico, was kind to share his poem, Purpose, with us. Click here to download and read John’s poem.
- If you missed May’s month’s session on Preparing for Summer Activities, click here to download the handout we shared, which has tips and suggestions to protect yourself this summer!
Happening In Our Parkinson’s Community…
- Wednesday July 10 3pm ET – Making Cooking Easier for People with PD – Brian Grant Foundation.
- PERSEVERE is a national study funded by the National Institutes of Health, led by Dr. Jori Fleisher at Rush University Medical Center in Chicago, IL. The study tests an educational program for family caregivers of people with Parkinson’s with cognitive impairment, Parkinson’s dementia, dementia with Lewy bodies (also called Lewy body dementia). For more information, please click this link from the Davis Phinney Foundation.
- Save the Date: 9/17/2024 APDA Virginia Parkinson’s Conference in Roanoke, VA.
– YOPN launches new online newspaper, YOPD Unfiltered, this monthly publication, written by members of YOPN, aims to bring a unique and personal perspective to everything YOPD.
– 7th World Parkinson Congress (WPC 2026) open to all stakeholders in the Parkinson’s community Sunday, May 24 – Wednesday, May 27, 2026. Opening of applications for ambassadors and volunteers for the WPC 2026, with the application deadline set for May 31st.
Recurring Meetings/Events
The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
PD Avengers invites you to take our SLEEP survey “Surveying Late Evening Effects of Parkinson’s.” This initiative delves into the often-overlooked realities of how Parkinson’s disease (PD) profoundly impacts sleep and aims to shed light on this lesser-understood symptoms and challenges of the condition.
First Wednesday of every month / 1:00 PM ET, online/virtual – Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease | Meeting ID: 892 0510 3333, Invite Link: https://apdaparkinson.zoom.us/j/89205103333
Dance for PD – George Mason University GMU – visit their website for more details.
The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
Live in Maryland? MAPS has a very extensive support group listing on their website.
Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
It’s Not Too Late to Join Today’s event: Dr. Jackomis and Dental Health
Maintaining & Promoting Oral Health with Parkinson’s
Dr. Rick Jackomis, DDS
Tuesday, June 11th, 2024
10am ET – 11:30am ET
(9am CT, 8am MT, 7am PT)
Click Here to Register for this Event
Dr. Jackomis will focus upon the delivery and need for dental care as it pertains to patients with complex medical concerns and aging. Particular focus will be upon the complexity of care and management of Patients with Parkinson’s Disease as they present with some unique challenges.
He will focus upon the issues the disease presents for the patient and the clinical challenges for dental care provider. Moreover, he will promote ways to maintain and promote the patient oral health.
Dr. Rick Jackomis, DDS is a practicing general dentist with over twenty years of clinical experience. His practice has a growing focus on an aging population, implant-based dental solutions, and the use of advanced technology for the delivery of care. He teach these topics and procedures to other dentists. He is a Fellow of the Academy of General Dentistry, a graduate of the Virginia Commonwealth University School of Dentistry and a graduate of the Valparaiso University School of Law. He is a member of numerous professional dental associations, study clubs and an associate member of the Virginia State Bar Association. He is also a public speaker for a couple of dental technology corporations and provide litigation support for malpractice and board complaint matters.
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