Parkinson Social NetworkDecember Staying Connected Newsletter
December Event:
Learn about SPEAK OUT! Speech Therapy Resources Available for Free in Virginia and DC
Tuesday, December 10
10am ET (9am CT, 8am MT, 7am PT)
Click Here to Register for this Event!
The SPEAK OUT! Therapy Program, developed by Parkinson Voice Project, helps people with Parkinson’s and related neurological disorders regain and retain their speech and swallowing. This highly effective, evidence-based treatment combines education, individual and group speech therapy, daily home practice, and continuous follow-ups. Patients are empowered to “speak with INTENT,” transitioning speech from an automatic function to an intentional act.
Speech Therapists Myra Schatzki, M.S., CCC-SLP, Director of Clinical Education of Shenandoah University and Brett Myers, Ph.D., CCC-SLP, Director of Clinical Education, Speech-Language Pathology Associate Professor (Clinical), Department of Communication Sciences & Disorders of University of Utah will share what SPEAK OUT! speech therapy resources are available for free both online via Zoom and in person in Virginia and Washington DC.
ICYMI: In Case You Missed It!
If you missed the airing of the recent presentation: Specificity Matters: Exercise and Parkinson’s Disease with Kirsten Bodensteiner PT, DPT, OCS click the play button above to view on our YouTube channel!
Kirsten has also shared dates for upcoming free opportunities to try PWR! Moves mentioned in her presentation. Free PWR! Moves classes: 12/9, 12/16, 12/30 at 1 pm. They will be at Body Dynamics, Inc. which is located at 410 S Maple Ave, #100, Falls Church, VA 22046. The number to call and register is (703) 527-9557.
PWR! Moves for Parkinson Disease
This group class is for people with Parkinson Disease who want to continue to decrease their symptoms, prevent progression, and move well throughout their daily activities. The exercises in the class target common issues that arise with PD, including stiffness, slowness, coordination, and automaticity. Kirsten Bodensteiner, PT, DPT is trained and certified in the PWR! Moves system of exercise for PD, which are a powerful, evidence-based tool for addressing PD symptoms. Come try out a free class to see if PWR! Moves are right for you!
Happening In Our Parkinson’s Community…
- WHAT PARKINSON’S FEELS LIKE: A collection of illustrations by Barbara Salsberg Mathews inspired by descriptions written by people with Parkinson’s around the globe. Download for free here: https://parkinsonseurope.org/app/uploads/2024/10/What-Parkinsons-Feels-Like.pdf
- Richmond Veterans PADRECC newsletter contains A LOT of upcoming events information and programs, click here to read the November newsletter.
- The Peddling for Parkinson’s is available at YMCA locations, learn more by viewing this flyer.
- UPDATE: Our PD friends in Central/Orange VA had an article highlighting their support group in the Culpeper Star-Exponent. You can read the article here (Thanks John Giannico for providing).
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or 540-665-4634.
- Parkinson’s Speech therapy via teletherapy in VA and DC – The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu.
- APDA Virginia Roanoke conference was recorded and posted to YouTube. You can watch the recording via this link.
- University of Reading has developed a new online group program that aims to improve participants quality of life and help them get back in touch with what is important. To learn more visit their website by clicking here.
- The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
- Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
- The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
- Live in Maryland? MAPS has a very extensive support group listing on their website.
- Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
November Staying Connected Newsletter
November Events:
Tuesday, November 12
12pm ET (11am CT, 10am MT, 9am PT)
*Please note meeting start time!*
Food for Thought Living with Parkinson’s – A Conversation with Denise and Bernard Coley
Wednesday, November 20
10am ET (9am CT, 8am MT, 7am PT)
Thanksgiving & Gratitude: An Open Discussion
Food for Thought Living with Parkinson’s – A Conversation with Advocates Denise and Bernard Coley
Tuesday, November 12, 2024
12pm ET (11am CT, 10am MT, 9am PT)
Click Here to Register for this Event!
Advocates Denise and Bernard Coley (co-chairs Black Support Group Leaders Alliance, members of PDMovers, co-chairs Special Interest Group-Black Diaspora) will join us for a couple’s conversation & discussion covering topics including: importance of communication, power of community advocacy, raising awareness & diversity, writing your own story, and living well with Parkinson’s! Denise and Bernard bring their optimism, experience, laughter, and support to share with our Parkinson’s community.
Thanksgiving & Gratitude: An Open Discussion
Wednesday, November 20
10am ET (9am CT, 8am MT, 7am PT)
Register for this Event!
Thanksgiving is nearing and for some of us it is easy to forget what we are thankful for.
This discussion is an opportunity for those with Parkinson’s disease and those who love those with Parkinson’s to share and discuss gratitude. We’ll discuss life lessons and lessons learned from living with years of challenges. This will be an open and facilitated discussion led by Karl Robb. Join us to share and connect with others to focus on and identify the positive elements in your life, despite Parkinson’s.
ICYMI: In Case You Missed It!
If you missed the airing of the recent presentation: Cardiac Manifestations of Parkinson’s Disease with Dr. Warren Levy MD, FACC click the play button above to view on our YouTube channel!
Happening In Our Parkinson’s Community…
- November 4 – Parkinson’s Education Day: Irvington VA – hosted by: APDA Virginia (in-person) – To register, visit this link.
- November 8 – Vienna Arts Society Arts Show benefitting APDA Virginia – in Person Vienna VA – For more information and to purchase tickets, visit this link.
- Richmond Veterans PADRECC newsletter contains A LOT of upcoming events information and programs, click here to read the November newsletter.
- The Peddling for Parkinson’s is available at YMCA locations, learn more by viewing this flyer.
- Our PD friends in Central/Orange VA had an article highlighting their support group in the Culpeper Star-Exponent. You can read the article here (Thanks John Giannico for providing).
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or 540-665-4634.
- Parkinson’s Speech therapy via teletherapy in VA and DC – The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu.
- APDA Virginia Roanoke conference was recorded and posted to YouTube. You can watch the recording via this link.
- University of Reading has developed a new online group program that aims to improve participants quality of life and help them get back in touch with what is important. To learn more visit their website by clicking here.
- The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
- Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
- The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
- Live in Maryland? MAPS has a very extensive support group listing on their website.
- Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
Parkinson Social Network 