Parkinson Social NetworkJanuary Staying Connected Newsletter
January Events:
Tuesday, January 14
10am ET (9am CT, 8am MT, 7am PT)
Watch & Discuss: Supplements in Parkinson’s Disease: Goose Chase or Game Changer?
Tuesday January 28
7:00pm-8:00pm ET (6pm CT | 5pm MT | 4pm PT)
Carepartner/Caregiver Only Discussion: Anger, Irritability and Other Mood Changes
Watch & Discuss: Supplements in Parkinson’s Disease: Goose Chase or Game Changer?
Tuesday January 14
10:00am-11:30am ET | 9am CT | 8am MT | 7am PT
We will Watch & Discuss a recording (~ 55 minutes) from the PMD Alliance titled: Supplements in Parkinson’s Disease: Goose Chase or Game Changer? with Dr. Laurie Mischley, ND, PhD, MPH . After watching this recording, we will have a facilitated discussion. Here’s the description of the recording from PMD Alliance: Most supplements aren’t monitored by the FDA, so it can be hard for the average person to know if the evidence supports claims around supplements and Parkinson’s. Laurie Mischley, ND, PhD, MPH will discuss & help you understand common supplements used for Parkinson’s symptoms and the evidence behind them.
Carepartner/Caregiver Only Discussion:
Anger, Irritability and Other Mood Changes
Tuesday January 28
7:00pm-8:00pm ET (6pm CT | 5pm MT | 4pm PT)
* Note Time Change
This discussion is for caregivers/carepartners only. In February, a separate discussion of this same topic will be held for people with Parkinson’s. The genesis for this discussion came out of a Davis Phinney Foundation Living with Parkinson’s discussion from August 2024. You can view this discussion on YouTube https://youtu.be/3BBJVmJ0N9w?si=BFFFwPk2hYEqEvWw.
We will discuss coping with these emotions, strategies and tools, and more. Please join us for this conversation with fellow caregivers/carepartners.
Save the Date!
Q&A with Dr. Randolph Stephenson,
Neurologist and Movement Disorder Specialist
Saturday February 22
10am-11am ET | 9am CT | 8am MT | 7am PT
Join us in February for an opportunity to talk and hear from Dr. Randolph Stephenson from the Neurology Center of Fairfax. Dr. Stephenson is a Neurologist specializing in Parkinson’s disease and is Movement Disorder Specialist. We’re excited to provide a resource to our viewers that will help start your year with answers to your questions. Come with questions for the doctor or submit them ahead.
Happening In Our Parkinson’s Community…
- February 22 – Virginia Parkinson’s Conference, Williamsburg VA, hosted by APDA Virginia – Register Now for Early Bird rate (until 1/24/25).
- April 12 – Virginia Education Day, Richmond VA, hosted by POP: Power Over Parkinson’s – Registration is Open!
- WHAT PARKINSON’S FEELS LIKE: A collection of illustrations by Barbara Salsberg Mathews inspired by descriptions written by people with Parkinson’s around the globe. Download for free here: https://parkinsonseurope.org/app/uploads/2024/10/What-Parkinsons-Feels-Like.pdf
- The Peddling for Parkinson’s is available at YMCA locations, learn more by viewing this flyer.
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or 540-665-4634.
- Parkinson’s Speech therapy via teletherapy in VA and DC – The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu.
- University of Reading has developed a new online group program that aims to improve participants quality of life and help them get back in touch with what is important. To learn more visit their website by clicking here.
- Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
- Live in Maryland? MAPS has a very extensive support group listing on their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
December Staying Connected Newsletter
December Event:
Learn about SPEAK OUT! Speech Therapy Resources Available for Free in Virginia and DC
Tuesday, December 10
10am ET (9am CT, 8am MT, 7am PT)
Click Here to Register for this Event!
The SPEAK OUT! Therapy Program, developed by Parkinson Voice Project, helps people with Parkinson’s and related neurological disorders regain and retain their speech and swallowing. This highly effective, evidence-based treatment combines education, individual and group speech therapy, daily home practice, and continuous follow-ups. Patients are empowered to “speak with INTENT,” transitioning speech from an automatic function to an intentional act.
Speech Therapists Myra Schatzki, M.S., CCC-SLP, Director of Clinical Education of Shenandoah University and Brett Myers, Ph.D., CCC-SLP, Director of Clinical Education, Speech-Language Pathology Associate Professor (Clinical), Department of Communication Sciences & Disorders of University of Utah will share what SPEAK OUT! speech therapy resources are available for free both online via Zoom and in person in Virginia and Washington DC.
ICYMI: In Case You Missed It!
If you missed the airing of the recent presentation: Specificity Matters: Exercise and Parkinson’s Disease with Kirsten Bodensteiner PT, DPT, OCS click the play button above to view on our YouTube channel!
Kirsten has also shared dates for upcoming free opportunities to try PWR! Moves mentioned in her presentation. Free PWR! Moves classes: 12/9, 12/16, 12/30 at 1 pm. They will be at Body Dynamics, Inc. which is located at 410 S Maple Ave, #100, Falls Church, VA 22046. The number to call and register is (703) 527-9557.
PWR! Moves for Parkinson Disease
This group class is for people with Parkinson Disease who want to continue to decrease their symptoms, prevent progression, and move well throughout their daily activities. The exercises in the class target common issues that arise with PD, including stiffness, slowness, coordination, and automaticity. Kirsten Bodensteiner, PT, DPT is trained and certified in the PWR! Moves system of exercise for PD, which are a powerful, evidence-based tool for addressing PD symptoms. Come try out a free class to see if PWR! Moves are right for you!
Happening In Our Parkinson’s Community…
- WHAT PARKINSON’S FEELS LIKE: A collection of illustrations by Barbara Salsberg Mathews inspired by descriptions written by people with Parkinson’s around the globe. Download for free here: https://parkinsonseurope.org/app/uploads/2024/10/What-Parkinsons-Feels-Like.pdf
- Richmond Veterans PADRECC newsletter contains A LOT of upcoming events information and programs, click here to read the November newsletter.
- The Peddling for Parkinson’s is available at YMCA locations, learn more by viewing this flyer.
- UPDATE: Our PD friends in Central/Orange VA had an article highlighting their support group in the Culpeper Star-Exponent. You can read the article here (Thanks John Giannico for providing).
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or 540-665-4634.
- Parkinson’s Speech therapy via teletherapy in VA and DC – The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu.
- APDA Virginia Roanoke conference was recorded and posted to YouTube. You can watch the recording via this link.
- University of Reading has developed a new online group program that aims to improve participants quality of life and help them get back in touch with what is important. To learn more visit their website by clicking here.
- The Southeast/Richmond PADRECC has announced their 2024 speaker/schedule of online events.
- Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
- The Davis Phinney Foundation Parkinson’s Care Partner Training is available to you for free and on your schedule.
- Live in Maryland? MAPS has a very extensive support group listing on their website.
- Marymount University’s PT Program is conducting a research study and recruiting study participants to measure the impact of climbing on physical and psychosocial measures of people with PD. To learn more about study, visit their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- Veteran’s with Early Onset Parkinson’s Disease (online) through Richmond VA/PADRECC, for more info, download this flyer!
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
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