Parkinson Social NetworkBowling Anyone?
This week we’ve been busy organizing our caregiver appreciation lunch. That’s tomorrow! On Monday, Parkinson Social Network will be at the Northern Virginia Dementia Care Consortium in Alexandria. I hope to see some of our friends from our Parkinson community there, too. On Wednesday afternoon, we’ll be throwing heavy round objects at defenseless wooden pins. Repeatedly. A.K.A. bowling!
Ashburn cafe
On Tuesday, I visited the Ashburn support group at Ashby Ponds. The speaker was a resident who spoke about Advance Directives and the forms she had completed – Virginia Medical Advance Directive form, and the 5 Wishes as a supplement because she could go into more detail. I felt how she would like to be remembered in her obituary was especially touching. It was “She tried to become the person she wanted to be.”
Alan Alda and Michael J. Fox Swap Stories about Living with Parkinson’s
Tuesday, November 13 Award-winning actor Alan Alda — who recently disclosed he has been living with Parkinson’s for several years — sat down and chatted with Michael J. Fox for the Season Two premiere of Alda’s “Clear + Vivid” podcast, available to download on November 13.
In this casual conversation about their individual experiences with Parkinson’s, Michael and Alan swap stories about the similarities and differences in their shared disease, their tactics for managing symptoms, their experiences sharing a diagnosis with family and friends, and ways for anyone to get involved in research. Click here on November 13th to listen in!
POE Women for PD
Poe Wellness Solutions is excited to offer POE Women for PD (Partnering Optimizing and Empowering Women for PD) supported by a grant from the Parkinson’s Foundation. Through funds raised by Moving Day® North Carolina, a walk for Parkinson’s, Integrative Health & Wellness Coaching is offered at no charge to women living with PD. Participants are referred to the program through The Movement Disorders Center at The University of North Carolina Hospitals and the Division of Parkinson’s Disease and Movement Disorders at Duke University Health System. Both programs are Parkinson’s Foundation Centers of Excellence. For more information, visit https://poewellnesssolutions.com/poepd/ or contact Meg Poe at meg@poewellnesssolutions.com or 919-998-8538.
Thank you, Angela for sharing information about this program! Angela also mentioned, “The program is over the phone and does not say you have to be in NC or SC to participate!” Click here for the direct link to the website.
Thank you, Angela (again!) for sharing this website. It’s http://alzauthors.com. In a recent post they wrote, “AlzAuthors is built by caregivers for caregivers, with a mission to provide carefully vetted books and blogs to help you find the answers and guidance you need. The majority of our authors have “walked the walk” with a parent, spouse, or other loved one,” Click here to check out their blog post National Caregiver Appreciation Month Book Sale & Giveaway.
Hoping to see you out and about soon! How about a fun afternoon of bowling next Wednesday, November 14? Click here to register – it will help us with planning.
Cheers,
Sonia
email: Sonia@ParkinsonSocialNetwork.org
It’s Family Caregiver Month!
Tune in to Hear Parkinson Social Network / Fairfax 50+ podcast!
Carol Barrett and I discuss what caregivers need to know about the disease, including how to find services. We also discuss the unique role the Parkinson Social Network plays in helping people with the diagnosis, and caregivers cope and support each other. Our thanks to Grace Lynch, Manager, Communications and Community Outreach, Division of Adult and Aging Services for arranging this podcast for us!
Tune in at Fairfax 50+ Podcast. Find more Fairfax 50+ Podcasts.
** If you’d like to access the various podcasts and webinars I write about in these newsletters and you’re not sure how, we have help on the way! Grace will be visiting Cafe Fairfax on February 20 to give us a tutorial on how to access podcasts and webinars.
Caregiver Appreciation Luncheon – last call!
We still have a few seats left for our Caring for our Caregivers luncheon next Saturday, November 10, from 10:30 am to 1:00 pm. Don’t miss out! Click here to register and click here for more details.
Did you know you can support PSN when you shop on Amazon?
Are you an Amazon customer? Parkinson Social Network is registered with AmazonSmile. When you shop on AmazonSmile, 0.5% of the price of eligible purchases will be donated to PSN. Click here to connect with AmazonSmile and designate Parkinson Social Network as your favorite charity. Through to 11:59 pm tonight, A
mazon will donate 5% – 10 times their usual rate! Thank you for your support!
Staying Positive When You Have Parkinson’s
Thank you, Karen, for sharing this inspiring article with us. Click here to read it on the ParkinsonsDisease.net website. Two of our local authors, Karl and Angela Robb, are also regular contributors.
Exciting News from Rock Steady Boxing Nova – now in Sterling!
And now a message from Alec . . .
We have a location! We will be at:
Disciple MMA Academy
21620 Ridgetop Circle Unit 100A, Sterling, VA 20164
It is a great gym with lots of space, lots of parking, heavy bags, big locker rooms, a ring, aka it is perfect! I am very excited for you all so lets get this thing started.
– I’ll be able to use the Loudoun gym starting next week and will start doing assessments immediately. Here is the link to schedule an assessment for next week (Nov 5th) at the Loudoun location.
https://calendly.com/rsbnova/assessment-loudoun/11-05-2018?back=1
– I want to get all the assessments done so we can start class on Monday November 12th!
Thank you all for your patience and I hope to see you soon!
Alec Langstein, Owner/Coach
Rock Steady Boxing NOVA
571.730.8553 | nova@rsbaffiliate.com | http://rocksteadynova.com/
Parkinson’s Cycle Class at Cycle Chi – starting next week!
When: Tuesdays and Thursdays 1:30pm – 2:30pm
Where: Cycle Chi, 211 Mill Street, NE, Vienna, VA 22180 (located next to Pennywise Thriftshop).
Requirements: A pre-class assessment is required to take the class to ensure safety. Cost is only $10 (first class fee). Participant must be able to get on and off bike with minimal assistance and be able to pedal safely. Assessments may be scheduled via email to Krista@cyclechi.com or by calling Krista at 703-303-0600 and will take 10-20 minutes.
Scheduling: Classes are drop in, but it is highly recommended that you reserve your bike in advance to ensure you have a spot in the class. Space is limited to 20 bikes and without a reservation you are not guaranteed a spot. Reservations can be made online at www.cyclechi.com or by calling Krista 703-303-0600 (please call more than 1 hour prior to class starting).
Cost: Cost will be the same as other cycle class passes which can be purchased online or in the studio. Class packs do not expire and can be used at any time.
$21 – Single Class Pass
$100 – 5 Class Pack ($20 per class)
$190 – 10 Class Pack ($19 per class)
$360 – 20 Class Pack ($18 per class)
For more information or questions please contact Krista via email krista@cyclechi.com or phone 703-303-0600. Hope to see you there for a fun workout!
Dance for PD®
*Update 11.1.18* Dance for PD® has released it’s latest streamed class – a June 2018 class taught by Mark Morris Dance Group company member Pamela Quinn. Click here to view and move to the music. There’s a new class available every month, usually with a different teacher, too. To check out their archive and keep on movin’ to the music click here.
Financial Preparedness: Be Sure to Save for an Emergency
Thank you, Arlene, for reminding me about Fairfax County’s Office of Emergency Management (OEM) Emergency Preparedness Newsletter. One particular article worth reading is Financial Preparedness: Be Sure to Save for an Emergency. Here’s one of the suggestions:
“It is important to have small bills on hand because ATM’s and credit cards may not work during a disaster when you need to purchase necessary supplies, fuel or food.” Click here to read this article in a blog post.
** In December we’ll be visited by Courtney from the OEM at Cafe Fairfax.
Hoping to see you out and about soon!
Cheers,
Sonia
email: Sonia@ParkinsonSocialNetwork.org
Parkinson Social Network 